Gluten causing neurologic symptoms...

by laura
(canton SD)

I have done much research to find out some people have neurolgical symptoms of gluten intolerance like siezures/migranes. How in the world do you try and explain that to a GI?

There are over 100 GI symptoms that show up in my immediate family that all point to celiac. I was the one that ended up with gluten in my head in the form of seizures with no digestive symptoms. How do I explain that to a doctor without them looking at me like I have third eye?

Celiac blood testing is negative.

Comments for Gluten causing neurologic symptoms...

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You Have 2 choices....
by: Kerri Knox, RN- The Immune Queen!

Hi Laura,

So, I'm really glad that you found out about your connection to gluten despite your doctors thinking that you are crazy.

To me it seems like they are just ignorant and set in their ways if they have read the research and still believe that you must have GI symptoms to have Celiac Disease.

Interestingly, though, they readily admit to 'believing' in Dermatitis Herpetiformis which is a skin condition that doctors will diagnose someone with celiac ON SIGHT without need for any testing or digestive complaints.

So, why dermatitis herpetiformis and nothing else? I have no answer to that.

So, apparently your doctor has 'believed' you enough to test you, so that is definitely something. But beyond testing negative, there are only two real choices that you have.

You can stay silent and know in your body that you are right and be happy about that with the knowledge that your doctor will likely never believe you anyway.

The other choice is that you be a collector of research studies about Non-Celiac Gluten Intolerance of which there are many.

And you can start your collection with the list of studies that I have on the bottom of that page. Print a study or two out each time you go to him and highlight in yellow some of the interesting remarks.

If you present them by saying, "Doctor, I found these studies about having illnesses related to gluten even when they didn't have celiac disease. But I don't really understand this, can you explain it to me?"

By putting him in the position of BEING the authority and YOU being the helpless, unknowing patient- it allows him to learn while 'saving face'- and using studies and expert options, and having LOTS of them, is really the only way that your doctor might eventually be swayed into being a 'believer' and seeing this disease as a real problem that truly is affecting people like you whose lives are being destroyed by this very real disease.

Kerri Knox RN Immune Health Queen

Kerri Knox, RN- The Immune System Queen
Functional Medicine Practitioner
Immune System

new to this
by: Melinda

I am new to researching gluten intolerance since i have been having digestive problems now for about 19 months. my blood test went out the other day so i am waiting to hear answers. i am a 27 yr old mother and i feel sick everyday! sometimes worse days, even feels like i will die!

In a way i hope this is a positive diagnosis, i dont know what else could be wrong with me. i already have anxiety but when i feel sick, it gets 100 times worse and i feel light headed and i feel like i am not really alive, it hurts. i started drinking alcohol more often to forget the symptoms, the bloating and general feeling of sickness but now i realise i shouldnt drink beer so ill switch to wine for now.

Don't Pin Your Hopes too High..
by: Kerri Knox, RN- The Immune Queen!

Hi Melinda,

Just don't pin your hopes too high on 'Getting the Diagnosis'. Please read my page on Diagnosing Gluten Allergy to see why testing fails the vast majority of the time.

Doctors can only diagnose Celiac Disease, but they won't ever diagnose Gluten Sensitivity or Non Celiac Gluten Intolerance which most doctors don't 'Believe In'- as if it's a belief system and not a scientifically valid health problem.

I suggest that you ignore the results if they are negative and embark on a Gluten Intolerance Diet ASAP to see if that relieves your symptoms.

Kerri Knox RN Immune Health Queen

Kerri Knox, RN- The Immune System Queen
Functional Medicine Practitioner
Immune System


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