Can Vitamin D cause idiopathic edema to mysteriously go away?
In 2005 while in Maui, I woke up on the 3rd day and felt awful, as I got up I felt like I was standing on water balloons! I couldn't' get my rings off, it hurt to walk, and although we had 7 more glorious days to spend there I couldn't stand to go outside...I was so hot (not due to the weather, it was beautiful over there) but I was miserable.
When we returned (btw, I had to be taken on board the plane in a wheel chair, something I never thought I'd ever be in) we went straight to my Internal Medicine doctor's office upon landing. He had just seen me 4 days prior and he couldn't believe how swollen I was. He was sure I might have COPD...I was sent to every specialist and all tests came back inconclusive. For the last 5 years I've been seeing so many different specialists and they all have been scratching their heads. A couple thought I had Lupus, others thought I had rheumatoid arthritis, other's thought it might be the pain medication I've been on due to RSD (Reflex Sympathetic Dystrophy after being smashed by a guy in a truck after my 7th back surgery...but still no conclusive answers.
About 2 months ago I got up in the middle of the night and softly hit my foot as I was going into the bathroom. I ended up breaking my foot and 2 toes. My Internal Med. doctor decided to run a Vitamin D blood test on me among other tests and when the results came back he was alarmed at the level of my Vit. D. It was basically not there!!! So he started me on 50,000 units once a week of
Vit. D supplements (prescription) plus 1,000 units every day forever.
He gave me enough of the 50,000 units of the Vit. D pills to last 6 weeks.......(six pills) in 6 weeks I noticed my shorts were literally falling off on me. My face was no longer puffy...when you push a finger into my skin it no longer left a "hole" where the finger pressure was. I'm done with the 50,000 units but still on the 1,000 units of Vit. D and will forever continue on it. My entire family has noticed how all the puffiness is almost gone.
I'm afraid to think this "Full Body Edema unknown etiology" is gone bcuz I think it will all come on again!!! So my question to you is have you ever heard of Vitamin D being used or other patients stating their edema has gone away while taking prescription Vitamin D pills? I'm not sure why I'm getting it by prescription rather than over the counter, but my insurance oompany has no problem paying for this type of prescription Vit. D.
Please tell me that Vitamin D is known to take off edema. I want to ask my doctor if I can go back on the 50,ooo units for a short while to get all this edema off of me. I've always been very thin until this strange unknown full body edema happened to me in a matter of days. I've always been 119 lbs. and in a week I put 20 lbs. on in a week and was begging my doctor to stop me from blowing up!!!!!
Please reply asap. I want to discuss this with my doctor right away. But I need to have some information to back me up.
Thank you so much,