Vitamin D treatment for MS?

by Tootie

I am a 38 year old female and have just recently been diagnosed with Clinically Isolated Syndrome (CIS)/MS. I had one episode of numbness on the entire left side of my body for approximately 10 days back in late May/early June. An MRI was done of my brain which indicated two lesions that were not extremely prominent, and an MRI was done of my spine which came back clean. Blood work indicated that my Vitamin D level was only 17 and from what I understand should be at least 25.

I met with my neurologist just last week after this series of tests and he prescribed 50,000 IU of Vitamin D each week for 4 weeks, then every other week for 8 weeks and after that down to once every month. I should mention that I live in northern VT and am fair skinned (my father is of Scottish decent).

I am extremely interested in understanding more about the link of Vitamin D to CIS/MS in terms of the lesions. I have been symptom free since early June. Interestingly I started to take 2,000 IU of Vitamin D on my own about 3 weeks ago based on some research I had been doing and I have been feeling my best yet.

What concerns me is that my neurologist still wants me to go on Copaxone daily injections at this point and I am simply not comfortable with that approach. I understand that Copaxone will likely erase the lesions I have, but what I am wondering is if studies have found that proper Vitamin D levels in the body can do same?

Any information or other sources you can point to would be greatly appreciated.

Thank you!

Comments for Vitamin D treatment for MS?

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Not Sure How You Missed It
by: Kerri Knox, RN- The Immune Queen!

Hi Tootie,

I'm not sure how you missed it, but I've written an entire page on MS and Vitamin D here.

I'm not sure who told you that your Vitamin D Level should be 25, but that's too low by anyone's numbers. Please read my page on Vitamin D Levels to see what it REALLY should be- and for MS, it should be on the highest end of that as the greatest benefit, in several studies, came at levels of around 100 ng/ml in MS patients.

You also might be interested in my page on Mental Changes from Vitamin B12 Deficiency where I discuss the STRONG connection between Vitamin B12 Deficiency and neurologic problems- and specifically brain and spinal lesions.

Lastly, I would HIGHLY recommend that you read my page on Symptoms of Gluten Intolerance since gluten sensitivity has many neurologic problems and could be the underlying issue for your entire problem!! And especially being of Scottish descent makes your chances of being gluten intolerant even higher.

There has also been quite a bit of evidence pointing to the fact that a diet, like The Wahls Protocol: A Radical New Way to Treat All Chronic Autoimmune Conditions, has reduced symptoms of MS and and even put people completely into remission.

There is MUCH that you can do, it is NOT inevitable that you will deteriorate- and don't let anyone tell you that you must.

Kerri Knox RN Immune Health Queen

Kerri Knox, RN- The Immune System Queen
Functional Medicine Practitioner
Immune System

Northern VT / MS
by: Nikki

This comment is directed towards Tootie. Not sure when you posted but I was curious where you live in Northern Vermont?

My mother has MS and she lives in Belvidere. I've been trying to get her to do certain vitamin treatments but I feel as though she would benefit from someone to talk to that is closer to her ( I live in Oregon).

If you receive this message I'd love to set you and my mother up to discuss your experiences with MS and perhaps both be on the path to further your education towards feeling the best you can feel!

You can respond to this comment if you're interested.


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