Comments for Vitamin D Deficiency with Lupus Symptoms

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Your Doctor Should be Sued for Malpractice
by: Kerri Knox, RN- The Immune Queen!

Hi Sherry,

So what you are telling me is that you are almost completely bedridden with pain and fatigue and you were diagnosed over a year ago with severe vitamin d deficiency that your doctor chose to 'watch' and do nothing about? That is completely unacceptable and is malpractice. Your doctor has access to the same information that I have about recommended dosages for vitamin d treatment and it is unacceptable to diagnose vitamin d deficiency and do nothing about it for a year while you are suffering.

You should really consider a malpractice lawsuit. In any case, I've covered all of this on my Vitamin D Therapy page. You should take 'enough' vitamin d to bring your levels up to between 50 to 80 ng/ml. And you'll determine if your pain is from lupus or vitamin d when your vitamin d levels are between 50 to 80 ng/ml. Sherry, Lupus is a very often a symptom of Gluten Sensitivity as well.

Kerri Knox RN Immune Health Queen

Kerri Knox, RN- The Immune System Queen
Functional Medicine Practitioner
Immune System

to Sherry
by: Laura B.

I also have Lupus. Diagnosed 1.5 yrs. ago after having symptoms for 14 years. Most doctors told me it was just all in my head. Anyway, about a year ago I started taking supplements which consisted of vitamins protein shakes, vit. d, etc. I have never felt better in my life! I have more energy than ever. I am 54 yrs. old and a Grandmother. I love getting up every day now. My old self could not imagine feeling like I did for the rest of my life.

Laura B.

Vitamin D + Magnesium?
by: Diane V.

I have SLE and have been ill with the disease for 40 years. For the last 25 years I did not seek out medical attention because, well, years ago so little was known about autoimmune diseases and those patients were often treated as psych ward prospects. Finally, a year ago I began seeing a rheumatologist because of a decline in my overall health, and he ran a lot of blood tests including checking my Vit D level. Results came back (in his own words) "very, very, low." He had me start taking 2000 IU/day and (upon my request only) checked my level again before our next was still low. He upped the dose to 5000 IU/day as well as started me on the medication CellCept. I became more ill and experienced horrible side-effects of CellCept. At that point he wanted to start me on infusions of Benlysta (no mention of checking Vit D levels again). This just did not seem like the right course of action to me. Shouldn't we get the Vit D level up to within normal range before making decisions on further aggressive treatments? At least that was my thought! Being that the medical office has it's own infusion room and a research room.....hmmmm.....I began to suspect that I was another 'test subject', and I decided to decline and step off of that train. I didn't return to that doctor. I am now in search of a good naturopathic physician.

My question for you is, should I take Magnesium Malate along with D3 to improve my chances of getting that Vit D level on track? I suspect that if I can get that level normalized that I will see a big reduction in my inflammation and pain levels. Thank you, Diane

Please see the thread
by: Kerri Knox

Please see the Vitamin D Therapy page that I linked to already in the thread.

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