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High Calcium Could Mean..
by: Kerri Knox, RN- The Immune Queen!

Hi Maria,

So, your Blood Calcium Level is not high now, but it certainly is borderline and if it was high a while back, I'm curious how they know this and why you are doing serial calcium levels for one.

Most people if they are healthy don't EVER have their calcium level checked and wouldn't have had their vitamin d level checked to know its 8.

So, you either have a really on top of it endocrinologist or there's something else going on that you aren't saying.

But either way, I'm REALLY glad that you asked. You really MUST get your parathyroid level checked. It's written as PTH on your lab sheet in case it has been checked.


If you have a borderline to high calcium level, then its possible that you have parathyroid disease. And if you REALLY get as much sun as you are saying, then that makes me even MORE suspicious of parathyroid disease because parathyroid disease will actually drop your vitamin d levels in order to not allow you to absorb so much calcium.

So, since your calcium level is high, your doctor is absolutely being remiss not checking your Parathyroid Hormone before giving you such a high dose of vitamin d.

So, I suggest that you absolutely do NOT take that vitamin d until you get your parathyroid hormone is drawn and determined to be normal. If your PTH is high also, then spend 2 hours on the Parathyroid.com website BEFORE your doctor orders you a bunch of useless tests that won't tell you if you have a parathyroid tumor or not.

So, I'm glad that you questioned that. No Vitamin D for you until you get a normal parathyroid hormone level back. And don't take no for an answer from your doctor. Insist on that test.


Kerri Knox RN Immune Health Queen

Kerri Knox, RN- The Immune System Queen
Functional Medicine Practitioner
Immune System

Why no vitamin D supplementation?
by: Anonymous

Can you please explain why you recommend someone with a low vitamin D level should NOT take vitamin D supplementation if parathyroid disease is suspect?

I'll refer you to Parathyroid.com
by: Kerri Knox, RN - The Immune Queen

I'll refer you to the website parathyroid.com on their Parathyroid and Vitamin D page as they say all their is to say on the subject.

High calcium levels are aVitamin D Contraindication and therefore you should not take vitamin d if you have parathyroid disease or high calcium levels unless you are SPECIFICALLY told to do so by an ENDOCRINOLOGIST. And even then you should question them to make sure that they are doing what is in your best interests that will not harm you.


Kerri Knox, RN

low vitamin D, normal PTH, fluctuating Calcium
by: Rebecca

Hi,
I have been dealing with fluctiating calcium levels for the past 10 months, 10.8, 10.6, 10 with some 9's in between so my PCP sent me to the Endo Dr. I had my PTH levels tested and everything thyroid related came back normal, my calcium was either 9.6 or 9.4 i cant remember BUT this time my vitamin D levels came back LOW (20).


My thyroids r enlarged but she didnt see any tumors with ultrasound, she tested for Graves and Hashimotos and has ruled those out as well. The Endo Dr has prescribed me 50,000 units of vitamin D per week. Any suggestions? I have a fear of taking the Vitamin D and feeling worse than I already do.

Read Parathyroid.com
by: Kerri Knox, RN- The Immune Queen!

Hi Rebecca,

By the way, your PARA-thyroids are different from your THYROID gland, so when you say that your THYROID came back normal, I assume that you mean your PARATHYROID!?


In any case please read the diagnosis page on Parathyroid.com to see why you could STILL have parathyroid tumors even if:

1) Your parathyroid numbers are normal

AND

2) Your ultrasound shows no tumors.


If you have a high calcium level, even once, you should INSIST on seeing an endocrinologist that specializes in parathyroids. Your calcium is elevated for a REASON and the most likely reason is a parathyroid tumor- even if your current endocrinologist says it's not. If he's wrong, then the consequences are possibly many years of calcium getting pulled from your bones and almost surely osteoporosis.

So PLEASE see an endocrinologist that specializes in parathyroid disease and don't accept anything less than this care.


Kerri Knox RN Immune Health Queen

Kerri Knox, RN- The Immune System Queen
Functional Medicine Practitioner
Immune System

Low vit d but normal to hi calcium levels with fibromyalgia
by: Anonymous

My Rheumatologist put me on Vit d when my labs cam back with vit d 24.She never mentioned my calcium but I check my labs & noticed an elevated calcium that is increasing with each lab.Last calcium level 10.4 mg/dl.Last vit d 35, sed rate 35, CRP 0.7.Postivie ana with nothing focal on exam except Fibromyalgia s/s.Recently diagnosed with a thyroid goiter after c/o pain with difficulty swallowing.

Goiter found with thyroid sonogram with no other findings.No other thyroid or parathyroid tests were done. I asked the my primary care physician about parathyroid problems & he stated that did not have anything to do with my problem & to continue taking my vit d & calcium.I have been afraid to take calcium & was not taking calcium anyway, just taking vit d as ordered by my rheumatologist.

I am suspicious of a parathyroid problem. I am stay extremely fatigued, have extreme all overbody body pain.

The Dr. says it is Symptoms of Fibromyalgia.

Fibromyalgia vs Parathyroid Disease
by: Kerri Knox, RN- The Immune Queen!

Hi Anonymous,

I'd appreciate your name when you respond so that I know if I'm talking to you, Rebecca (who started the thread) or someone else.



So, #1 Problem: If you have high calcium levels, it should always be ASSUMED that you DO have parathyroid problems until an endocrinologist that SPECIALIZES in parathyroid problems says that it is NOT. Please go to parathyroid.com and spend AT LEAST 1/2 hour to 1 hour on their site. Do not just 'skim' over the information. Read it.

You'll find that even most endocrinologists miss the diagnosis when the PTH is not elevated. So why does your rheumatologist believe they are an expert in endocrine problems. Your endocrinologist would not claim to be an expert in rheumatological complaints, would he?

So, my suggestion is to INSIST on seeing an endocrinologist that specializes in parathyroid problems.


Problem #2- there is NO SUCH THING AS FIBROMYALGIA!!! Please read my page on Fibromyalgia syndrome vs. Disease. It's irresponsible to give a diagnosis of a 'syndrome' when all of the potential causes of the syndrome have not been 'ruled out'.

Your Rheumy is being irresponsible and if you later get osteoporosis and find out that you DO have a parathyroid tumor, you should sue your Rheumy for malpractice for refusing to give you a referral to the appropriate specialist.

If you are unable to get a referral then:

1) Go see one and pay out of pocket

2) Get your rheumy to put in writing that she is 100% sure that you do NOT have a parathyroid tumor and that your current symptoms cannot be caused by this.

You'll see how sure your rheumy is when she refuses to put that in writing. If she WON'T put that in writing, ask her why.


Go see the correct doctor no matter what it takes and if you do have a parathyroid tumor, then sue your rheumy for malpractice.


Kerri Knox RN Immune Health Queen

Kerri Knox, RN- The Immune System Queen
Functional Medicine Practitioner
Immune System

To take vit d or not ?
by: Dana

Hi,
I was recently sent to an endocrinologist because of calcium levels of 10.9, 11.0,and 10.3. My vitamin d level was 17. I also recently went to the ER with kidney stones.I suffer from depression and anxiety as well as muscle and joint pain.

My pcp didnt want to prescribe vit d until my pth levels were checked and when they came back at 54 she sent me to endo. He says its nothing to worry about just take 50,000iu vit d once a wk and come back in a month. I am so confused, everthing I have researched says vit d raises calcium.

I feel terrible all of the time and have for many years. I suspect I have had this for a long time and no one connected the dots that my many symptoms are possibly all caused by high calcium and low vit d. The endo says not possible for parathyroid because my pth and calcium are not high enough. I just want to feel better. Can you help?

All that I can tell you...
by: Kerri Knox, RN- The Immune Queen!

Hi Dana,

It sounds like you are a bit of a victim of the system. Unfortunately, your endo may not be correct. If you CAREFULLY and THOROUGHLY read the entire website at Parathyroid.com, then you'll see that your endo's statements don't agree with the statements on the parathyroid website. With a high calcium, you do NOT have to have a high parathyroid hormone level in order to have parathyroid disease and you should be evaluated by an endocrinologist who specializes in parathyroid disease.

If you look at the first page that you come to on parathyroid.com and scroll down about 1/2 way, you'll see that patient's #3 and #7 look extraordinarily close to your numbers.

Good luck getting the help that you need.


Kerri Knox RN Immune Health Queen

Kerri Knox, RN- The Immune System Queen
Functional Medicine Practitioner
Immune System

Low PTH, High Calcium, low Vit D
by: Anonymous

I am concerned.
I have high calcium, a normal PTH and low Vit. D
My Endo told me I do not have parathyroid disease.
Now she has ordered a blood test that looks for tumors.

Can you have parathyroid disease with a normal PTH?

Please Read the Advice I Gave to the Previous Person
by: Kerri Knox, RN- The Immune Queen!

Please read the advice that I gave to the previous person. If you READ the website that I sent her to that will answer your question.

Kerri Knox RN Immune Health Queen

Kerri Knox, RN- The Immune System Queen
Functional Medicine Practitioner
Immune System

Low Vitamin D, High Calcium, Normal-Low PTH
by: Jeremy

Hey I've been reading around so much all over the internet and just came across this site...I got sent to an endo by my gastro who ran a test for calcium and it was 10.4 then he retested and it was 10.6 and now my endo called me friday and told me my calcium level is 11.1.

The nurse told me that my PTH was 15.9 (14.6) previously and that the endo told me it is NOT pth related so he wants to send me for a lot more blood tests to get done before my next appt and in the meantime he wants me to take 50,000 i/u of vitamin d twice weekly...I've read parathyroid.com a lot and i'm so confused as to who to trust and what not...what should i do?

Jeremy

Call Parathyroid.com doctors
by: Kerri Knox, RN- The Immune Queen!

Hi Jeremy,

I feel for you. You are stuck between a rock and a hard place. I've had several people on these boards have luck actually speaking to a doctor from parathyroid.com and that is likely to be your best bet.

You need to speak to a parathyroid specialist and not 'just' an endocrinologist. Unfortunately, with a high calcium level, you are out of the realm of my area of expertise....


Kerri Knox RN Immune Health Queen

Kerri Knox, RN- The Immune System Queen
Functional Medicine Practitioner
Immune System



High PTH, high-normal Calcium, low Vitamin D
by: Theresa

I am a 31 year old female. I have high blood pressure, lightheadedness and fatigue. I have had tons of bloodwork done. My intact PTH readings are 83.1 and then 93.3 PG/ML. My blood Calcium has been 10.3, 10.1, then 9.8 MG/DL. My Vitamin D level is 11.6 NG/ML.
So, with a high PTH, high-normal Calcium, and a low Vit D, do you think I have hyperparathyroidism?

I don't 'think' anything
by: Kerri Knox, RN- The Immune Queen!

Hi Theresa,

I don't 'think' that you have anything or don't have anything. Having parathyroid disease is a medical diagnosis that you need to have diagnosed by an endocrinologist, it's not an opinion that someone on the internet can have.

So, please read this page on parathyroid.com and compare your labs with the lab results on the chart about 1/2 way down the page. If your lab results on the chart match up to the ones that they say are indicative of parathyroid disease then do whatever it takes to see a parathyroid specialist who can tell you for certain whether you do or not...



Kerri Knox RN Immune Health Queen

Kerri Knox, RN- The Immune System Queen
Functional Medicine Practitioner
Immune System
Side Effects

 


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High calcium in a 10yo boy.
by: pepperderr

My son is 10 yo. He has been peeing a LOT lately. His eyesight went from 20/50 to 20/200. I finally took him to the doctor and even though the doctor said it could wait, I had him do some blood tests. He tried to say that my son's peeing large amounts was probably puberty or just habit. They said no diabetes. His test results are


BUN 12 6 - 20 mg/dL
CREATININE 0.6 0.7 - 1.5 mg/dL L
SODIUM 143 135 - 146 mmol/L
POTASSIUM 5.2 3.5 - 5.1 mmol/L H
CHLORIDE 103 98 - 111 mmol/L
CO2 22 22 - 32 mmol/L
GLUCOSE 93 70 - 120 mg/dL
ANION GAP 18 7 - 15 mEq/L H
CALCIUM 10.7 8.3 - 10.5 mg/dL H
WBC 12.72 4.00 - 13.50 K/uL
RBC 5.66 4.00 - 5.20 M/uL H
HGB 16.6 11.5 - 15.5 g/dL H
HCT 47.5 35.0 - 45.0 % H
MCV 83.9 77.0 - 95.0 fL
MCH 29.3 25.0 - 33.0 pg
MCHC 34.9 32.0 - 36.0 g/dL
RDW 12.7 11.5 - 15.5 %
PLATELET COUNT 323 140 - 400 K/uL
MPV 11.6 6.6 - 11.1 fL H
SEGS 59 30 - 60 %
LYMPHS 28 29 - 65 % L
MONOS 8 1 - 11 %
EOS 4 0 - 6 %
BASOS 1 0 - 2 %
ABS. SEGS 7.53 1.8 - 8.0 K/uL
ABS. LYMPHS 3.61 1.5 - 7.0 K/uL
ABS. MONOS 0.99 0.0 - 1.4 K/uL
ABS. EOS 0.51 0.0 - 0.8 K/uL
ABS. BASOS 0.06 0.0 - 0.3 K/uL
CALCIUM, IONIZED 1.39 1.13 - 1.32 mmol/L


I got a call from the nurse today saying everything is normal except his Calcium was high and his vitamin D is low. I don't know how low. She said give him extra vitamin D and recheck the Calcium and vitamin D again in 3 months. This seems to me like it might be hyperparathyroidism. But is that likely since he is only 10yo?

Don't Know Likelyhood
by: Kerri Knox, RN- The Immune Queen!

I don't know how 'likely' it is that your son has hyperparathyroidism, but it certainly sounds like he needs to see an endocrinologist...



Kerri Knox RN Immune Health Queen

Kerri Knox, RN- The Immune System Queen
Functional Medicine Practitioner
Immune System
Side Effects

 


PS: If you found this website helpful, please consider using the
Easy Immune Health Product Store the next time you purchase your supplements online. Your support allows me to keep this site running and educating as many people as possible. Thank you!

PTH Levels
by: Anonymous

I had hyperparathyroidism due to a tumor on one of my parathyroid glands. To the person who spoke of having a PTH test for thyroid problems: PTH stands for PARAthyroid hormone and is not related to the thyroid gland. The four grain-of-rice-sized parathyroid glands lie behind the thyroid gland. It took 4 yrs and 5 doctors to get a correct diagnosis--mostly due to negligent doctors and serum calcium levels fluctuating from the high-end of normal to elevated. As a result, doctors dismissed the levels as a fluke and my symptoms as stress?one even calling me a hypochondriac.

In the meantime, I was so weak and in pain most days that I could barely stand, walk or get out of bed. Surprisingly, my condition was accurately diagnosed by a rheumatologist who made the extra effort to think outside the box. It was he, not my endocrinologist, who first tested my PTH level. Both my PTH (87) and Serum Calcium levels (11.5) were elevated that day. I later learned that a 24-Hour Urine Calcium test is more reliable in catching elevated calcium levels in your body, since it is done over a 24-hour period. Although my serum calcium levels fluctuated, my 24-hour Urine Calcium levels were consistently "very" high. This along with my elevated PTH finally prompted doctors to do a Sestamibi Scan--a nuclear scan specifically for finding parathyroid tumors. Unfortunately, the radiologists were not experienced in the identification of parathyroid tumors, and misread the scan as normal.

A few months later, my ENT sent me to an outside, more experienced radiology team for a sonogram of my neck, and they found the tumor. Prior to my surgery, the ENT surgeon requested the film for the prior sestamibi scan and discovered that the radiologists had misread it. Prior to surgery, he showed me where on the scan the red "hot spot?tumor--was located. It confirmed the sonogram results. The lesson: Be persistent. If your doctor won?t listen, go to another doctor? and another and another until you find one who will.

To gain insight as to why doctors often dismiss real symptoms and under-diagnose or misdiagnose serious diseases in their patients, read the book ?How Doctors Think.? It?s written by a prominent physician and is a real eye opener. He says many doctors pre-judge patients based on appearance, weight, demeanor, as well as whether they are happy, sad, nervous, etc. at the time of the visit. Reading the book?s case studies was like reading about me?and my aunt, uncle, friend?s mother, and friend?s sister?all of whom died of cancer within months of being told nothing was wrong.)

Now I knew why I and they were treated so dismissively by their doctors for so long. (Hyperparathyroidism was the 2nd disease I had that was under-diagnosed by several doctors over several years. The first was a large, toxic abdominal mass that was also incorrectly diagnosed as stress, even though I was anemic and in pain--a red flag. The book also discusses radiologists and why scans are often misread.

low vit d cosntant, high pht, extreme vary in calcium
by: Anonymous

I'm showing all the symptoms of parathyroid, but my doctor isn't convinced.
my pht levels came back at 68 (high, but not ridiculous), my vit d is always low. my calcium was over 10 for one test, and 2.4 for another. i was feeling fine when they took the blood for 2.4, but my doctor refuses to do it again. is it normal for people with parathyroid tumours to have a calcium that goes that low on occasion?

On the Pursuit of Parathyroid help!
by: NOLA-Tammy

1/2012 - I have been reading for weeks... I have read the Parathyroid.com website from top to bottom. I'm a healthy 47yo female that was diagnosed with my first high calcium level (10.3) by my gyno (because I was drained and was loosing hair) 8 weeks ago. He sent me for a repeated test to only come back with calcium (9.8). Good you say? Not for me, so I made an appt. with an Endo and she tested my PTH (58); calcium (10.1) and vitamin d at (27). We're waiting on my DEXA scan as my body aches terribly all day. She advised me to take 3000 IUs of vitamin d3 and come back in 6 mos. Wrong...I am now scheduled for an ultra sound of my neck, recommended by my ENT. Where does it stop? I need to get someone to make the right diagnosis. Unfortunately, Dr. Norman is in Florida and I'm in Louisiana. Help!

If you've read parathyroid.com then...
by: Kerri Knox, RN- The Immune Queen!

If you've read parathyroid.com, then you know that this is not an issue that a nurse on a website about natural health can help you with. If no one in your area can help get you the answers that you are seeking, then maybe you need to make a trip to Florida! I'm not saying that you 'should' do this, but if you are not getting the answers that you think you should be getting and you are frustrated and worried, then maybe you need to take the extra step and get to Dr. Norman or someone else who IS an expert in this area.


Kerri Knox, RN

Get tests
by: John

My dr. Finally addressed my high calcium levels since 2010
Sent me to a endo dr. He checked my pth and found to be normal but ordered a nuclear scan of my neck wich showed 2
Abnormal parathyroid glands, he sent me to a parathyroid surgen who has sched. Surgery to remove them. I have felt bad for 3 yrs and had many test and wrong procedures and my symptoms are getting worse.Im hoping having this out patient surgery is my start to feeling better. Can parathyroid desease cause my lack of energy and pain in my feet ,legs, cold feet ,anxiety, sleeploss.

I'm nervous - I only have 2 parathyroids left after TT in 2011
by: Monica

Ok so I had a calcium level of 10.1 on Sept 11,2014. My calcium back in July 24,2014 was 9.3. Of course my Vit D is way low due to my hypothyroidism from TT and I was told by friends in an online support group that I need to have my calcitrol levels checked as I may have VDR BSM which is a receptor mutation and could explain why my calcium is high. I already have adrenal insuffiency proved by saliva labs and am getting ready to start treating that but now I'm scared after reading the site above that u referenced that I could have a parathyroid tumor. I only have 2 left as my thyroid surgeon was a butcher. Please advise me. I'm sure I need the PTH test but any other one?
Thanks if you respond to this
Monica

Please help!!
by: Jody

Hi!

I am a 24 year old female. My health history is long with undiagnosed issues such as: ADD, GERD, headaches, stomach Ulcers, Gastritis, Stomach pains, gall bladder removal,interstitial cystitis, high blood pressure, and recently kidney stones. I eat a clean diet, plenty of water intake only limited caffeine, and I even drink shakeology. My urologist found that my 6 kidney stones were made all of calcium carbonate and calcium phosphatase. My parathyroid level at this time was only slightly raised at 68. My 24 hour urine came back with normal calcium levels and kidney function panel was normal. They sent me to an ENT., he said that with normal calcium levels I couldn't have hyperparathyroidism but wanted a second opinion. He put me on a vitamine D supplement of 50,000 IU once a week even though my vitamin D was 20 and not actually deficient but insufficient.

He sent me to an Endocrinologist who checked my blood and levels. My vitamin D was normal but my PTH was now 100. He told me my symptoms were not from my PTH because my calcium was 9.8. After doing my own research from parathyroid.com and mwdical journals, I realized I could have noncalcemic hyperparathyroidism. I am at a loss of what to do. I see a doctor on Wednesday that is an endocrinologist. He said he would look into things and actually consult with Mayo clinic if he has to.

What are your suggestions? I am so fatigued I can sleep 10-12 hours and still barely wake up. My digestive issues have been worse and worae, the medical bills are adding up and I'm getting no relief! Please help!!! Other than my medical records, what should I bring with me to the endocrinologist? How can I prove that what I have is real?

Thanks!

Low vitamin D
by: Anonymous

My vitamin D has been low for several years (18) now, I never thought of having my Endo check my calcium, but recently my I was taking 5000 IU's of vitamin D I stopped about 2 weeks before going to the doctors, while I was there I had them run my vitamin D and calcium my vitamin D came back @ 29 my calcium came back @ 9.5 my endo recently did a ultrasound on my thyroid said it looked normal except one side was larger than the other, I have had a lot of muscle weakness, blood pressure is somewhat elevated 127/95-99 heart rate at night 50-55 at rest during the day 60-65 along with tinnitus and slight headaches

not sure about my parathyroid
by: Kimberly

I was diagnosed with fibromyalgia 15 years ago. I had trouble with my shoulder for over a year before Dr finally xrayed it and found calcium deposits. By this time, every joint and in boddy ached. Put me on colcrys, which helped. I was also complaining of being tired, memory problems, nausea and a few other thing.

The dr blamed fibro for all of it, that's why it took so long for the xray. Then I had a neurologist tell me my vitamin d was low (21) and put me on 3000 units a day. Then I got a sinus infection, followed by severe allergic reaction, followed by an ear infection that the drum busted... all within 2 months. I had my adrenal gland tested 2 months after off steroids, it came back 10. He tested my calcium at the same time..it was 10.1. Adrenal dr said let it go, it will get better.

I then did my own diging, asked Dr to test parathyroid and stopped my vitamin D. I started to feel better...slowly, once I stopped vit d. Calcium went down to 9.8, vitamin d 21, & parathyroid 63. So he wants me back on 2000 units of bit D and says all will work out. I'm not confident in that diagnosis. What do you think?

See a parathyroid specialist
by: Kerri Knox, RN

I think that you should see a parathyroid specialist and get it definitively determined as to whether or not you have a parathyroid tumor, and have them say whether it's OK to put you on Vitamin D or not.

That's the safest course of action.



Kerri Knox RN Immune Health Queen

Kerri Knox, RN- The Immune System Queen
Functional Medicine Practitioner
Immune System
Side Effects

PS: If you appreciate the free help that I give on my site, please consider making your next supplement purchase through my Health Store in order to help keep this site in operation.

Dehydration influence on lab results
by: Jeanine

I have had fluctuating calcium levels: 10.4, 11, 9.8. My one PTH test was 47. Vitamin D tests:19.2, 21.7. I have read parathyroid.com and I realize fluctuating calcium numbers can be indicative of a parathyroid issue even with a normal PTH.

I am wondering however if dehydration can impact bloodwork results.

I am not one to drink water throughout the day. Could that be the cause of fluctuating numbers? A few sites mention this but really don't explain the extent of dehydration and it's impact. Parathyroid.com does not really get into this which is surprising because they talk just about everything else.

Also, any recommendations for a parathyroid specialist in the Long Island/NYC area?

Low vitamin D with normal PTH and Calcium
by: Jon G

I have had low Vitamin D since found a year ago. I have been on 50,000 UI twice a week, and still my levels around are around 17 - 19. My PTH and Calcium are all normal. What the heck is going on?

Thank you for any info that will send me in the right direction,

Jon G

read my page on
by: Kerri Knox, RN, The Immune Queen

Read my page on Vitamin D Absorption.

Thyroid nodule vs parathyroid tumor
by: Virginia

I am 31 and on two BP meds, have had gallbladder removed, pancreatitis, irregular sleep patterns ranging from extreme insomnia to sleeping for hours and never feeling rested, complete hysterectomy, and the long list of symptoms from the last 5 years or so goes on and on.

However, in the last few months I have reached a new level of exhaustion/fatigue I cannot push through, muscle spasms in arms, abdomen, legs and right side of neck. Doc has run all kinds of tests to figure it out because it started as a double ear infection but once it cleared up my right side of my neck began to swell up in large knots that looked and felt like glands swelling.

We did a neck ultrasound and lymph nodes are all normal so the swelling "must be muscular" and some sort of arthritis in my joints that hurt and swell too, and I have a single 2cm nodule on rt side of my thyroid.

They called it a coincidence and scheduled my apt for two months out to get it biopsied. The only labs that came back "off" were my low Vit D (20), calcium normal high 10.0, PTH 24. After reading the website I still am not sure how borderline those numbers are.

I will absolutely bring it up when I go see the endo doc, but I still have several weeks and my doc had to up my beta blocker to 100 mg a day due to passing out and out of control BP ranging from 113/60- 180/100 and my HR changes with my position from 60-100. But other than feeling like I might die, my BP has been way worse so I wasn't too worried about that.

I have had BP's as high as 220/134 and as low as 92/55. They have tested me for Pheochromocytomas and 24 he urine tests and thyroid tests are all normal.

Why does a young 27 yr old wake up with highly reactive hypertension that only seems to happen when upright position and bottoms out when laying down? 4 cardiologist and many other docs just don't know...

All of this to ask you, is it possible the thyroid nodule they found on ultrasound is actually a parathyroid tumor or are the ultrasounds pretty reliable at seeing the difference?

I did read the section about the scans but it seemed to more discuss the use of ultrasounds the day of surgery and not as diagnostic tools. Also, they did a neck ultrasound 3 years ago to try and figure out my BP issues and it was 100% normal, no nodules reported, so did they miss it or is it new...

I just don't know what to be more concerned about. All I know is I'm not well and want to make sure I ask the right questions to get the right help.

Sincerely exhausted and scared,
Virginia

Read parathyroid.com
by: Kerri Knox, RN, The Immune Queen

Hi Virginia,

Please read parathyroid.com again. There are MANY pages on the diagnostic use of scans and ultrasound. I do not think you read the website carefully enough. It also discusses, in depth, the calcium and PTH levels that should be concerning to you and that, to be diagnosed properly, you will need to see a parathyroid expert and not a regular doctor.

Please read the site again. It answers virtually all the questions you asked.


High pth, normal/borderline calcium, lowish vitamin D
by: Mo

I'm female, age 66. I've high blood pressure, had a stroke, gaining weight, and kidneys declining- GFR is 41 (was 54 before being treated the past 2 years for the above list). Meds have brought my BP down, but it keeps fluctuating wildly.

My calcium does too, 11, 10.4, 9.7, 9.1,10.6, 10.3, 9.6, and today was 9.9

My PTH is 122, my vitamin D level is 29.

My doctor (nephrologist) just prescribed 2000 units of Vitamin D for 6 months and then he will see if my PTH goes down. He considers my calcium levels normal. I feel awful all the time. I've read parathyroid.com and am still confused.

Hyperparathyroidism?
by: Nancy

Hi Kerri -- I am 66 and became aware of my high calcium 3 months ago. It is currently 14.5, pth is 8.1, vit. D is low. Nothing is being done about this, except that I was browbeaten into taking 2000 iu of vitamin D daily.

The endo is "waiting and seeing"; I don't see him again until June (it is now January). I have numerous symptoms of hyperparathyroidism -- e.g., extreme fatigue, kidney stones, gallstones (gallbladder removed 2 months ago), noticeable hair loss, memory loss, some mental confusion, osteopenia.

I now have mild to moderate kidney damage. A sestamibi scan on parathyroids was negative. I am concerned about my health but wonder if I am being unreasonable -- i.e., the doctors aren't at all concerned. I am also on 600 mg lithium for major depressive disorder.

please read the thread again.
by: Kerri Knox, The Immune Queen

Please read the thread again and go to parathyroid.com

If you believe you have a parathyroid issue and that your doctor is not helping you, then you might want to seek a second opinion from the doctors at Parathyroid.com

Still not sure!
by: Eddie

Hey...I'm wondering if it's possible I have hyperparathyroidism....my PTH levels have been checked 3 times and are normal...my calcium has been as high as 10.7...then down to 10.1, 10, and most recently 9.8...and am currently waiting on another calcium reading...

I've lost quite a bit of weight (17 pounds in 2 months), have high pressure as well as anxiety, and just a generally low mood....not sure if it's related as well, but my Magnesium is low (0.73) as well as my vitamin D being 83, where I was told upwards of 100 is optimal....ill be going for an ultrasound in a months time...until then, anyone have any advice?

Hi Kerri
by: Karen

I have been to the site. The info is VERY helpful, yet confusing as you can imagine.
Here's my situation...

61 y.o. female, Creatinine 1.39 (climbing) was 1.29 wants to retest next week, calcium 9.7, PHT, 61, Vitamin D is 16...

Now here's my concern and where I get a little confused... as you can see, my Calcium and PHT are within range but on the high end, correct? With that being said, is that considered high or do you need to be over to be considered high?

Just so you know all about me, which may give you a clue into why I'm so concerned ... I'm on Topomax 300 mg daily and have been for several years. Also have used Motrin for pain ip until recently, never felt excessive but will not use again. WC injury, opioid in past also, corticoid steroid and injections recently and toridol.

Sorry this is lengthy, but my Dr wants me to do prescription Vit D, retest in a week? From what im reading, Im a little apprehensive to say the least? Am I understanding this correctly? In your opinion, besides being referred to an Endocrinologist and discontinuing Topomax under my WC Drs care, if appopriate, what wiuld be my next step?

Please let me know if this makes sense. Thank you for your time.

Please go read parathyroid.com
by: Kerri Knox, The Immune Queen

Please go back and read parathyroid.com

They answer your questions on that site as to who has hyperparathyroidism. If you do, then Vitamin d is the wrong prescription, if you don't, then there is no harm in taking vitamin D for low Vitamin D levels.

But please read the site as to why you should not take the prescription Vitamin D (even if you don't have hyperparathyroidism) and why you need to take it with magnesium, vitamin A, Vitamin K, and a multivitamin.

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