Comments for Hypercalcaemia, Low Vitamin D, High Parathyroid Levels

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Hypercalcaemia and Vitamin D
by: Kerri Knox, RN- The Immune Queen

Hi Poss,

Thanks for sharing your story. That is great that you aggressively looked for alternatives to surgery.


Keep having your Vitamin D, Calcium and Parathyroid Levels checked- probably monthly. You don't say how much Vitamin D that you are taking, as Vitamin D Supplements aren't standardized- so taking 4 tablets could be a lot of Vitamin D or not very much at all depending upon how much the Vitamin D Supplements contain.


But you'll want to make sure that you get your Vitamin D Levels up to between 50 to 80 ng/ml (this might be reported in nm/L in Australia, so you'll want to have them report it to you in NANOGRAMS PER MILLILETER so that you get the right levels). This is the level that is considered 'optimal' by Vitamin D researchers and may take a LOT of Vitamin D to get to that level.




Some people get worried about taking so much Vitamin D, but the only reported problems with Vitamin D are when people become TOXIC from OVERDOSING on Vitamin D- something that you will be avoiding by getting your Vitamin D Levels checked frequently.


Unfortunately, one of the few Vitamin D Contraindications is Elevated Blood Calcium Levels and it's likely that you will need to have parathyroid surgery.


But I hope that this treatment works for you, Poss. Please keep us informed of your progress!




Kerri Knox, RN- The Immune Queen
Functional Medicine Practitioner
Easy Immune Health.com



Vitamin D and Parathyroid - me too!
by: Gege

Hi. I am so glad to come cross this page. I have
the same problem. My Parathyroid Hormone was very high, My Vitamin D level was very low- actually almost undetectable- and my calcium level was upper normal. I have bone pain, weakness, jaws pain, constipation and dizziness all the time.

I had surgical removal of my parathyroid gland then started to take vitamin D & calcium suppliments (1600 unit/ day )

I don't know if this could reverse my symptoms.

I did the surgery outside of the UK and when I came back home, my GP didn't refer me to the specialist, should he?



Low Vitamin D and Parathyroid
by: Kerri Knox, RN- The Immune Queen

Hi Gege,

Yes, it would be a good idea to be seeing an endocrinologist as there can be all kinds of problems with having your parathyroid glands out.

You should specifically have your Blood Calcium Levels watched carefully and your Bone Density Levels checked to make sure that your years of No Vitamin D Levels and your loss of Calcium hasn't given you osteoporosis.


Also, talk to your doctor about getting another Vitamin D Level ASAP!!!

It is unlikely that the 1600 IU's that you are taking has raised your Vitamin D Level much.


In fact, take a look at a discussion that I had with another woman who was taking over 7000 IU's per day for over a year and was STILL Vitamin D Deficient!

50,000 IU's Vitamin D and Still Deficient!

Unfortunately, her situation is NORMAL and nothing out of the ordinary. We just need a lot higher doses of Vitamin D than most people believe.


So, Gege, don't wait over a year to get your Vitamin D Levels up to within normal limits. Ask your doctor to get on an AGGRESSIVE treatment regimen since you are having so many symtpoms.

An aggressive regimen would be something like 50,000 IU's per day for one month and then get your Vitamin D Level Checked again.


I'll bet you'll be surprised that your Vitamin D Levels might STILL not be within the normal range!


Good luck and let us know how things turn out!





Kerri Knox, RN- The Immune Queen
Functional Medicine Practitioner
Easy Immune Health.com




Need to see doctor, to discuss and get blood test to check low or high vitamin d for Hypercalcaemia, can make you very ill otherwise.
by: Poss


Hi I take around 3 vitamin d tablets around 3000 Ui I think? Dont rely on this though go and see your doctor and discuss it when them, everyone is different.


I take one at Breakfast, One at Lunch and One at dinner.


I tried 2 in morning 2 at night but i found I was getting shaky, nausea and the runs so I cut down to 3 a day.

My doctor said I needed between 3000 to 5000 IU a day some people can take that dose others can't like myself so I cut it down to 3 but haven't done the blood test yet.


Vitamin D, you don't know how much until you get a level
by: Kerri Knox, RN- The Immune Queen

Hi Poss,

I believe that it is unlikely that you are getting shaky and having diarrhea from the Vitamin D. I have NEVER heard of anyone getting symptoms like that before from Vitamin D.

It would be more likely that you are having a reaction to something else OR to something IN your Vitamin D- like the oil that it is packaged in.



You might want to try a different formulation like this
Sunshine Mist Vitamin D Spray in order to tolerate your Vitamin D better.


Also, if your Vitamin D level was 'really low', 3000 IU's to 5000 IU's is NOT going to effectively bring up your Vitamin D Levels to within normal range unless you are VERY small!


But if you are an average sized adult, then you are going to need a lot more. Read This Previous Post to see that this woman has been taking 7000 IU's per day for a year and is STILL Vitamin D Deficient!!


Please ask your doctor for another Vitamin D Level as soon as possible. You'll see that your Vitamin D Levels have probably barely moved.


The dosage that you are taking is a Maintenance dose and not a dose to TREAT Vitamin D Deficiency. It is particularly urgent that you get your Vitamin D Levels to within the 'Optimal Range' of 50 - 80 nanograms per mole if you have hypercalcemia and are attempting to avoid having parathyroid surgery!



So, please talk to your doctor ASAP!!




Kerri Knox, RN- The Immune Queen
Functional Medicine Practitioner
Easy Immune Health.com






connection of vit D and PTH and calcium
by: Old Guy

My wife has VERY low levels of Vit D (3-5) and severe bony density loss so she just started taking Forteo shots once a day.

She is also going to start very high doses of Vit D (prescription) but there's lots of evidence being discussed at one site (Parathyroid.com) saying that almost all of their patients with high blood calcium definitely have usually only least one of the four parathyroid glands enlarged and causing the problem.


They are saying that it is always the parathyroid gland enlargement causing the low blood vit D, not ever the other way around.


Unfortunately they are surgeons in the business of removing that gland so what is one to believe in all of this?


Obviously I am worried that the Forteo shots (made up of parts of natural PTH) would make the situation worse.

Vitamin D and Parathyroid
by: Kerri Knox, RN-The Immune Queen!

Hi Old Guy,

This is a very tough question that I do not have a great answer for you.


I too, have read the information on Parathyroid.com and did some in depth research on their science. What I found was a study on Vitamin D Deficiency and Hyperparathyroidism which states "Vitamin D3 supplementation causes a decrease of the serum PTH concentration".

This Study on Response of Parathyroid Hormone to Vitamin D Supplementation states, "Our results also suggest that PTH decreases quite linearly during vitamin D supplementation at any given 25-OHD level"

The second reference is a "metanalysis" which means that many studies were looked at to arrive at their conclusions. It SEEMS like it should follow that if you reduce the PTH, that the calcium levels would ALSO drop IF there were no tumor.


HOWEVER, and this is a big however, I DID NOT FIND any evidence that decreasing the Parathyroid hormone decreased Blood Calcium Levels! So you are still in the same position!


AND, it seems that it certainly is possible that the Vitamin D Supplementation COULD increase the calcium levels in the blood, so you need to get VERY CLOSE monitoring of her blood levels.

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