Dr says I have fibromyalgia- I don't believe so
by Charlotte H. Grey
I have had many corticosteroid injections in my life ON August 18, 2010 I had surgery Ulnar Nerve Compression, prior to surgery I took prednisone to stop symptoms until I could have the surgery, the surgical site became infected, Dr put me on Cipro, stayed infected put me on another antibiotic, September woke up 103.3 fever went to hospital, admitted post op infection at ulnar surgery site, IV antibiotics, pill antibiotics 5 days in hospital (only 1% of people get infected from ulnar nerve surgery) came home took 10 days of antibiotics, while in hospital my ankles were stiff, got home ankles got worse then hands and wrists, then feet, ankles and hands swelled up like balloons, went to family dr put me on 10 mg prednisone per day and sent me to Rheumatoid Dr he took me off prednisone, all symptoms came back (blood work negative for RA, positive for NO vitamin D) put me on 4 months prescription vitamin D, wanted to put me on oral chemo said I had RA. I went back to family Dr told her get me another rheumatoid Dr, she put me back on 10 mg prednisone per day, new rheumatoid dr in April, he says I have fibromyalgia because my blood work is good.
My ankles, feet, hands, wrists kill me my legs ache, my hips hurt. I have weaned myself off the prednisone. Every time I came down 1 mg I got very sick.
I have been sick since I had surgery in August 2010. I take 60 mg cymbalta, 50 mg savella twice day, 4 mg zanaflex up to 3 times per day, celebrex 200 mg twice per day, opana 10 mg 3 times per day, fentanyl 75 mcg/hr patch change every 48 hours, Nuvigil 250 mg
I need something to go to bed, something to get up something to fight pain all day.
Forsyth Medical Center (Novant Health) Winston-Salem would take no responsibility for infection. Numerous attorneys tried to help me but could not.
NO doctor has been able to tell me why I started these problems only after my hospitalization and post op infection.
This has ruined my life, I can hardly work, I am so fatigued and my quality of life is gone AND no one cares and NO one has helped me.