Vitamin D Deficiency and Eosinophilic Esophagitis

by jeannie
(canada)

I have heard that people with Eosinophilic Esophaghitis are often deficient in vitamin D. Do you know anything about this and how Vit D can help this disorder?

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Eosinophilic Esophagitis and Vitamin D
by: Kerri Knox, RN-The Immune Health Queen!

Hi Jeannie,

Well, vitamin D deficiency is probably a result of the malabsorption that occurs in eosinophilic esophagitis. Normal levels of Vitamin D can help to modulate the immune response and to decrease the inflammation.

But Vitamin D Deficiency is not the primary problem. While I would certainly get it corrected, the PRIMARY problem is gluten intolerance!



If you REALLY want to improve this condition, then immediately going on a gluten free and dairy free diet is going to do much more for you than anything else. There has been a lot of literature published about the cellular changes of EE reversing on a gluten free diet.


So, if you aren't already gluten free and need some help, I highly recommend starting out with The Healthy Urban Kitchen
. It will take you step-by-step and teach you how to eat gluten free AND healthy- which many other gluten free diets teach you to eat gluten free junk food rather than healthful foods.


So, I hope that you take this opportunity and take the first step towards reversing your problem, you really can feel a lot better.



Kerri Knox RN Immune Health Queen

Kerri Knox, RN- The Immune Health Queen
Functional Medicine Practitioner
Easy Immune Health.com

Inaccurate Information!!!
by: EoE Mom

Ms. Knox,

May I please suggest that you do your research on Eosinophilic Esophagitis before advising people to go diary/gluten free. While dairy and gluten may certainly be triggers for SOME people, it does not necessarily mean that everyone with EoE should remove these foods from their diet. I have a child with EoE, who has NO issues with either dairy or gluten! His triggers are carrot and soy!

Some sites you may refer to, published by hospitals and Doctors who specialize in these disorders, for accurate information are:

http://www.cincinnatichildrens.org/svc/alpha/e/eosinophilic/about/default.htm

http://www.chop.edu/service/center-for-pediatric-eosinophilic-disorders/about-eosinophilic-disorders.html

Hi Mom!
by: Kerri Knox, RN- The Immune Queen!

Hi EOE Mom,

While certainly not ALL people are going to be reactive to dairy and/or gluten, testing is most often inconclusive or just plain wrong.

Therefore, since there is such a high number of people with any chronic health problem that ARE sensitive to these 2 foods and there is no other way to determine whether someone is sensitive to these foods, then I will always recommend that people try a gluten free and dairy free diet for at least 2 months and up to 6 months in order to be 100% sure if that is the problem or not.

But thanks for your input!


Kerri Knox RN Immune Health Queen

Kerri Knox, RN- The Immune System Queen
Functional Medicine Practitioner
Immune System

 


PS: If you found this website helpful, please consider using the
Easy Immune Health Product Store the next time you purchase your supplements online. Your support allows me to keep this site running and educating as many people as possible. Thank you!


Wrong Info.
by: Shane


EE and gluten or EE and dairy allergens are not to be cut from a diet simply because one says so. Coming from someone who has EE as myself, and months away from a degree in the nutritional field, those statements are quite wrong as a standard for EE treatment. (Speak with an allergist). As "EE mom" has pointed out, each individual has their own triggers.

It made it much easier on myself to be in the field while being diagnosed and to understand what I was feeling as symptoms. For others it's a long journey and very scary at times. I'm not here to disprove the site, but rare disorders shouldn't be so casually reported on. Thank you very much for taking the time to be helpful for those in need of "general" healthcare knowledge.

How many lives have you seen ruined from gluten sensitivity
by: Kerri Knox, RN- The Immune Queen!

Hi Shane,

Again, thanks for the input, but I highly disagree. While it's true that a gluten free diet is not the 'standard' for EE treatment, it's also not 'standard' for ANYTHING except Celiac Disease- and that's the problem and the reason why it takes those same allergists that you are talking to an average of Ten Years to diagnose Celiac and recommend going off of gluten. And this isn't even including those who are simply gluten sensitive and NEVER get diagnosed, so they are stuck figuring it out themselves or suffering with gluten induced symptoms their entire life. ANYONE AND EVERYONE with ANY chronic illness can and should try a gluten free and dairy free diet (and corn free and soy free) for between two to six months to make sure that is not the problem FOR THEM.


And while I'm glad that you are getting your degree in nutrition, how many people have you actually WORKED with who've been to allergists- sometimes several- only to be told that gluten is NOT their problem, then they get off gluten and their problem clears up? And you never will unless you make it a standard in YOUR practice to get people off of gluten as a matter of course.


Whether it's EE or Fibromyalgia or IBS- everyone thinks that THEIR disease needs to be treated super different and super special because it's a totally unique disease. But I hate to tell you that almost ALL of these problems will improve on a gluten free diet- and in fact even completely healthy elite athletes can improve their strength, speed and recovery by getting off of gluten because gluten is always and for everyone an inflammatory food. And since nearly everyone with chronic illness has inflammation, going gluten free helps almost everyone.


But until you actually work with people and STOP talking to the same allergists who leave people undiagnosed for 10 years, then you'll never know this. And that will be a shame for your clients who are going to remain suffering for years due to your ignorance. I already feel sorry for them and I DO hope that they find my site so that they can learn this and actually get better despite your bad advice to them...




Kerri Knox RN Immune Health Queen

Kerri Knox, RN- The Immune System Queen
Functional Medicine Practitioner
Immune System
Side Effects

Off Subject
by: Shane

No one was speaking about celiacs disease. Stick with EE. An allergist does not typically diagnose EE, a GI would be the proper physician (due to a required biopsy). Next an allergist would become involved to diagnose the triggers..

So to blame an allergist would again be incorrect. The point by earlier posts was that glutten and dairy are not givens as triggers but MAY be variables that an allergist can test for. A simple skin prick or patch test checks for factors..

So these 10 year stretches of misdiagnosed patients would be eliminated if they were guided to the correct sequence of doctors.

You have no idea what you are talking about...
by: Kerri Knox, RN- The Immune Queen!

Hi Shane,

I'm afraid that you are BADLY misinformed. First of all, gluten sensitivity is NOT an allergy and is NOT diagnosed by a skin prick or patch test. You said, "The point by earlier posts was that glutten and dairy are not givens as triggers but MAY be variables that an allergist can test for." While they can certainly test for it, it's not done by pin prick or patch test and having a negative test is absolutely worthless.


Gluten ALLERGY is tested that way, but that is a distinctly different problem than gluten sensitivity. Even people with full blown Celiac disease can test negative for a gluten ALLERGY. Gluten sensitivity and Celiac are autoimmune diseases, not allergies. Celiac Disease is diagnosed by the presence of BOTH:

1) High gliadin antibodies
and
2) A positive intestinal biopsy

If you do not test positive for Celiac and you do not have a gluten allergy then, as far as doctors are concerned, you do can eat gluten without problems. This is FALSE and seems to be what YOU believe.

Shane, I suggest that you read more on gluten sensitivity because you are badly badly misinformed about it and advising people that testing is accurate is going to hurt a lot of people and leave them badly confused and suffering for years. These people who don't get diagnosed for over 10 years HAVE been to gastroenterologists, allergists, rheumatologists, psychiatrists, etc. And remember, these are only the people that get a diagnosis of Celiac Disease, these are NOT people with Non Celiac Gluten Intolerance who essentially have to diagnose themselves because doctors don't believe in it. These people often suffer for much longer than that.

Do you really believe that when the AVERAGE diagnosis is made ten years after the onset of symptoms that people just didn't go to the right doctor?? It's that doctors are NOT diagnosing it because YOU CAN'T TEST FOR IT! When all tests that can be done are negative, this does NOT mean that gluten isn't damaging you, causing you health problems or triggering your EE. Sorry, but that is the case and there is NO WAY to find out if it is contributing to EE or any other autoimmune disease without eliminating it from your diet and seeing how you feel.

Please read my pages on:

Diagnosing Gluten Sensitivity

Non Celiac Gluten Intolerance

and

Celiac Disease Research


You need to do more research on this because you do not know what you are talking about and you are going to be badly misinforming people and contributing to the 10 year delay in diagnosis...

All autoimmunity comes from the gut...
by: Kerri Knox, RN- The Immune Queen!

The other thing that I would like to point out to you is that there is MUCH research pointing to the fact that ALL autoimmune disease, of which EE is one, is CAUSED by Increased Intestinal Permeability.

In other words, there can be no autoimmune disease without an impaired gut lining leaking food proteins, usually gluten, into the bloodstream and overwhelming the immune system. YOU may be talking about a gluten ALLERGY as a trigger to flare-ups as EE. I'm talking about the pathogenesis of EE and the way to ELIMINATE it, not just 'manage' triggers.

Here are a few resources on this:


Alterations in intestinal permeability

Tight Junctions, Intestinal Permeability, and Autoimmunity

Mechanisms of Disease: the role of intestinal barrier
function in the pathogenesis of gastrointestinal
autoimmune diseases



So, this is what you are missing. Damaged gut lining is the CAUSE of EE. You can't HAVE EE without a damaged gut lining. Any 'allergic triggers' are incidental and a RESULT of those food proteins leaking through the GI tract into the bloodstream. While it's great in the short-term to avoid these allergic triggers, your goal in the long term should be to eliminate what is causing the problem in the first place and this is an altered gut lining- with gluten being a primary cause.

I suggest that you join Functional Medicine Town and listen to the lecture by Dr. Aristo Vojdani, PhD on the mucosal barrier and you can also discuss this with other practitioners who are working with patients. Don't take my word for it, ask people who are working with patients what the cause of autoimmune disease it- and they will overwhelmingly tell you that gluten sensitivity is a MAJOR cause in almost 100% of cases




Kerri Knox RN Immune Health Queen

Kerri Knox, RN- The Immune System Queen
Functional Medicine Practitioner
Immune System
Side Effects

Thank You
by: Anonymous

Ms. Knox,

Thank you for your intelligent responses regarding gluten intolerance. It is very sad that the general public is so misinformed. My health was greatly improved by a gluten free diet (I tested negative for Celiac but had several other autoimmune disorders).

If only people would attempt this diet change (or any other diet change for that matter), they may find that their life can be changed (although I recognize that not everyone will see the same benefits). Please continue to share your knowledge so that the American public can begin to better understand.

In a recent visit to New Zealand, I was asked if I was Celiac or gluten intolerant in a restaurant (as to accommodate my diet) - they are so aware that they even know the difference in restaurants and all restaurants have gluten free menus. We need to get to the same place here in the U.S.

Thanks again.

thank you
by: jen

I have a 10 year old son who suffers from ee and it's only getting worse. After his 5th upper endoscopy today we have decided to try gluten-free. The whole family is going to do it to support him. I only think it can help all of us.

Thanks for your advice.

gluten free, dairy free has helped my son with EE
by: Anonymous

I wish I had seen this website years ago. My 5 year old has EE and we have a gastro, and a traditional allergist. Our pediatrician is an MD who practices functional medicine. We also see a holistic nutritionist. On traditional tests my son was positive for wheat but negative for dairy. He is also positive for corn, soy, and about 10 other things we refer to these as his histamine allergies or IGE allergies.

The ped. orderd an IGG which is not recognized by the traditional medical community.
My son was extremely sensitive to dairy, casein, gluten and oats. We refer to these as his food intolerances because his body does not digest them correctly. They release antigens which cause an immune response. His EE has improved dramatically since we removed gluten and dairy.

Thought maybe this might help clarify the difference. Please note a traditional allergist will not run an IGG. Which is a shame so many children are suffering.

EE RELATED
by: Anonymous

Hello there,

Perhaps your advice may be valid, but Shane was right about EE and how it determined. I say this because I went through the whole process and it had nothing to do with relations to considering a gluten free diet. In fact we should advice to seek the many options out there to find what works for one. Currently, I may have a an EE flare about once a year, it is being controlled.

_________________________________________________

[Kerri's note: I notice that you didn't say that you went on a strict gluten free diet and that it did not reduce your antibody levels. Because that is how you would be able to tell if it actually 'worked' for you or not.

Unless you went on a gluten free diet for some months to a year, and were strict, you may not 'feel' better or even have fewer flares, but that is not an objective measurement. Antibody levels are an objective measurement. As I've pointed out ALL autoimmune disease has, at it's heart, a leaky gut. Unless you fix that leaky gut, you will never get better because you will continue to have antigens from your gut leak into your bloodstream.

Also, you obviously did not read what I said. You are not even listening to what you yourself said. You said, "we should advice to seek the many options out there to find what works for one".


Yet you would EXCLUDE even the OPTION of a gluten free diet for those who are suffering simply because it didn't work for YOU... despite you having not done any objective measurements to prove that it did not work.

And I'll bet you would have changed your tune if it HAD worked for you. Did you even READ the comment below yours that said that her son was helped by a gluten free diet DESPITE the fact that MOST doctors won't use the test for it that HER pediatrician used to find the sensitivity?

It's a good thing that you are not HER son's advisor, because he'd still be suffering right now.]

You are so wrong on this one! What a crock!
by: Irritated

Wow. I cant believe the misinformation you are giving. Seems like everyone who has this knows you are wrong. My son has EE as well. We are gluten free due to HIS allergies. He can only have 8 foods & cow's milk is one of them. No way are we giving it up. He is doing much better following a diet based upon HIS allergy testing. EE IS an ALLERGY NOT a sensitivity. It is UNRELATED to celiacs. The gut & intestines have nothing to do with this other than they connect to the Esophagus. EE is in the ESOPHAGUS!!!

Yes, I'm irritated too...
by: Kerri Knox, RN- The Immune Queen!

I'm irritated too... because you do not understand what you are talking about. I've explained it in my thread, but you have obviously not taken the time before actually looking at the links that I gave to explain why eosinophilic esophagitis is VERY much related to the gut. In any case, I'll explain again and provide the links again, and you can either decide that you already have all the answers because that is what your doctor told you. Or you can decide to learn about the condition on a deeper level than what you believe that you know about it.

For one thing, I agree with you that eosinopilic esophagitis has a component of being an allergy. And I agree that it's not related to Celiac Disease- but gluten sensitivity is ALSO not related to Celiac Disease. They are related as being a problem to gluten, but hundreds of thousands of people have gluten sensitivity and do not have Celiac Disease. Please see my page on Non Celiac Gluten Intolerance. So, if you learn nothing else from reading this, please learn that all people with Celiac are sensitive to gluten, but not all people who have gluten sensitivity have Celiac Disease.

So, EE has a component of being an allergic response, there we agree, it also has a component of being an autoimmune issue. Did you ever stop to wonder where allergies, particularly food allergies, and autoimmune diseases come from?? They come from THE GUT, specifically the small intestine. So to say that EE is an allergic response is to have to ADMIT that the problem stems from the gut.

There is much research on this, including a recent study on peanut allergies being improved through the administration of probiotics.

"Over the past 10 years,
a number of clinical studies have investigated the potential of probiotic bacteria to ameliorate
the pathological features of allergic disease. This novel approach has stemmed from
numerous data reporting the pleiotropic effects of probiotics that include immunomodulation,
restoration of intestinal dysbiosis as well as maintaining epithelial barrier integrity."
From Probiotic therapy as a novel approach for allergic disease.

Epithelial Barrier Integrity is another word for Increased Intestinal Permeability, and this is the mechanism by which the gut causes allergies, and particularly food allergies. When the intestines become inflamed and/or damaged, food proteins begin to 'leak' into the bloodstream and the immune system begins to attack these food proteins as 'foreign invaders'. If this continues, then food allergies and autoimmune diseases result.

How is this related to gluten? Gluten is one of the most common food proteins that initially cause the inflammation and are the first proteins to begin to leak into the bloodstream.

Going gluten free can be such a life changing experience for so many, that NOT simply attempting a gluten free diet for 2 months in order to see if it works for you is total idiocy. Just do it and see if it helps. I can't tell you the numbers of people who have had excellent results with a gluten free diet who would still be suffering if they had waited to be told to do so by their doctor.


Kerri Knox, RN

Links
by: Kerri Knox, RN- The Immune Queen!

And here are the links to the information about the mucosal barrier test and all of the research and studies thatthat you can get when you join Functional Medicine Town.


And here's another study about the relationship between the gut and food allergies, Food Protein-Induced Enterocolitis Syndrome: Laboratory Perspectives


Listen, research, try and then decide!
by: EE Mom

I cannot tell you how much this thread upset me. My son has EE which has only improved since I stopped believing the "EE specialists" had a clue! He did NOT test positive to a gluten/wheat "allergy" but when I removed the gluten and diary from his diet his condition improved. Sure, you must also know/avoid other "allergies" to avoid further damage. But avoiding those allergens will only manage this disease (if you are lucky). If you are like me and want your child to live a healthy life, disease free, you might want to listen and do your own research on gut health. I know a GF/DF diet alone will not REPAIR his severely damaged gut but it will reduce the inflammation which contributes greatly to his condition. I too was blind at one time. I did everything the docs said and he made NO improvement. We went from 3 "allergies" to 78 overnight, he lost weight and was very sick and when I decided to take care of my baby with the help of MDs and NDs who believe in "nutrition" not "medication" we stopped losing foods, avoided the tube and we are on a very long road to recovery. I wish four years ago I had listened to someone suggesting "gut/intestinal permeability" as a cause. I didn't listen because I too thought that EE was a very specific or special disease, it's NOT. Like so many others it begans in the gut and when the immune system gets fired up it can attack your esophagus and you have EE, your intestine/colon and you have celiac or chrons, your pancreas (diabetes), your thyroid on and on, but they all start with a damaged gut.



I have nothing to gain from someone listening to me...nothing. But I hope you moms will consider because the kids can't help themselves. The docs and pharma companies have a ton to lose if you find out your childs disease can be treated without drugs/scopes/tubes/doctors(that don't believe in health). I am not saying cutting gluten/dairy will cure this disease it won't but it is certainly a necessary step in repairing the digestive tract.

Thank you Kerri, your conviction will encourage others to open their eyes to this world of health so many refuse to believe is possible. I have not read all your links on gut permeability but want to thank you for addressing that and not just a GF/DF diet.

GREAT JOB!!

EE, Gluten, Alternaria Fungus, etc.
by: Raoul

I've been gluten free for seven years after trying an elimination diet and many chronic problems, including GI problems, ceased when I finally got to wheat on my schedule of eliminated foods. But I am not celiac and can't be, because I don't have DQ2 or DQ8 DNA. Three years ago I developed severe eosinophilia and dysphagia indicative of eosinophilic esophagitis. Since I was extremely strict in my gluten free diet, gluten was not the cause of my eosinophilic disorder. But I highly recommend a gluten free diet to everyone as there are adverse health impacts caused by wheat that are too numerous to mention.

At the same time, little that I read about the mainstream about EE makes much sense. Increasing evidence is pointing toward involvement of aeroallergens, and especially the ubiquitous, fungus, Alternaria alternata, which has also been linked to asthma with an eosinophilic component. Research has shown that Alternaria not only is capable of inducing IgE mediated and non-IgE mediated adverse adaptive immune responses, but that even tiny dead fragments (not live spores) act as adjuvants (accelerants of immunity) and also provoke innate immune responses by eosinophils through the CD11 receptors on eosinophils and they also cause eosinophils to degranulate destructively via aspartate protease calcium channel recognition. Not only are Alternaria fragments abundant and increasing greatly in many indoor and outdoor environments, but foods grown in places like the San Joaquin Valley of California where Alternaria is proliferating are likely to be contaminated, and many foods are likely contaminated, possibly aggravating EE. Also, Alternaria very commonly colonizes human sinuses (98% per Mayo) and post nasal drip would carry Alternaria down the esophagis, adding to the problem and the known reactions described above involving proliferation, chemotaxis, and degranulation. I had to move to a region with little Alternaria and take stringent steps to avoid Alternaria and my peripheral eosinophilia dropped from over 20% to less than 1%. Most of this is non-Ige mediated and IgE testing is useless.

RE: Gluten Free and EE
by: Anonymous

Hello. I became severely ill about 8 years ago. I am now 39, and have been officially diagnosed, through multiple biopsies, as EE and EGID. I am still extremely ill. I came on here looking for help when I saw all the negative posts regarding your advice of removing gluten from the diet for EE.

I have been through YEARS of testing for my EE and EGID, and have included blood tests, skin scratch tests, and the test where the put the food on your skin, tape it up and wait for several days to see a reaction. EVERY SINGLE TEST WAS INCORRECT. As an adult who is severely ill from this disease, I can tell you that those tests DON'T work. I know when a food makes me ill, and those tests said that I could eat eggs, gluten, dairy, etc., and when I do eat those foods, I become extremely ill. It may not be right away, which can make it very tricky.

It doesn't hurt to try and eliminate gluten and dairy from one's diet for several months just to try it out. You may be surprised. Of course, I wish it were that easy for me. I obviously have multiple foods that I have yet to discover that are making me ill. Help me!!

EE patient
by: Anonymous

Hi,

I am a 40 yr old with EE. I think you information makes a lot of sense, and wish all of the angry posters could read other positive posts. I have tested negative for every allergy known including celiac, and much like the above poster, still am not able to eat many foods. I too have been told I don't need to worry about the foods I eat, but when I eat gluten I flair up, same with eggs, pretty sure corn, and every form of real protein out there...I agree, keep putting this info out there. If there is an EE box, I clearly do not fit, so there ar bound to be others in my boat. I have stumped 2 GI, 3 allergists, and a handful of primary care physicians! I am grasping for straws here and willing to try almost anything, I can't feel much worse!

"Leaky Gut" needs recognition
by: Mad at the MDs

Quick note to those actually seeking advice from this site. The information offered by the owner of this site is correct, although a true six food elimination diet would be recommended for determining your food triggers for EE in lieu of access to IgE and IgG testing.

How I know this. I'm currently 38 years old and very physically active, but I've had significant environmental allergies (pollen, animals, etc) and digestive problems since I was a young child, including IBS and dysphagia from EE (EE was diagnosed this year). Allergists over the years said i was just "an allergic person" but had no food allergies, and the GI docs said I had "a sensitive tummy". A few years ago I developed substantial anxiety and premature ventricular contractions, which I'd never had previously, and was told by an irritated cardiologist that I could take beta blockers or just get used to having the PVCs.

Then at the beginning of 2013 I went to the local ER following a bout of acute dysphagia. I was referred to another GI doc who performed multiple upper endoscopies and made the diagnosis of EE. I was told I would be on high doses of PPIs and swallowed corticosteroid inhalers for the rest of my life. I tried to reason with him that this was not acceptable and that I wanted to try an elimination diet with his guidance because skin prick testing showed nothing. He actually refused. I went to my trusted family doctor (MD) who advised a blood test for a 96 food IgG response panel. I got the results and was highly sensitive to ALL of the foods. However, I need to note that my highest response was to GLUTEN, DAIRY, SOY, AND EGGS, with a fairly high response to NUTS. That's five of the six foods of an elimination diet. Then, my doctor did an amazing thing that no western medicine doctor has done. He said I might have increased intestinal permeability (aka Leaky Gut), told me he wasn't qualified to treat it, and referred me to a naturopathic doctor.

A few months later of following a modified Paleo Diet and, guess what? Digestive issues are gone. I'm off of the PPIs completely (only took five weeks with no rebound hyper acidity). Anxiety's gone. PVCs are gone. No dysphagia. Plus I lost 20 lbs I didn't know I had to lose, am totally ripped, and have tons of energy.

Most of the docs (GI docs, allergists, etc) are wrong. Diet is everything. In the short term diet will help with the symptoms of so many conditions, and in the long term will fix the underlying condition. Food sensitivities=inflammation=autoimmune dysfunction. I've met with numerous peer aged people with the same story. Bottom line is that you need to own your health or that of your children. This has greatly changed how I look at what I feed my family.

Leaky Gut Syndrome
by: Kerri Knox, RN- The Immune System Queen

Since we are on the topic of the gut and how Leaky Gut Syndrome is the cause of 'all' autoimmune disease, there's a great webinar on it. I encourage you to watch the 2 hour webinar replay of Solving Leaky Gut. I think that you will enjoy it and learn a lot from it.

Please learn more about how leaky gut is related to ALL autoimmune diseases. More and more research is coming out all of the time that keeps confirming that this is true. If you do not reverse your leaky gut, you'll never eliminate your autoimmunity. And yes, autoimmunity CAN be reversed.


Kerri Knox, RN

Gluten and immune system disease
by: Jason

Hi guys, "triggers" in eosinophilia are not the cause of the disease. This is something many of you see confused about.

Trigger foods cause flares but you will never get better avoiding those. The cause of the disease in 99% of cases is always going to be gluten. Dairy is only a later consequence.

In fact once the cycle starts many of us will never get better, but the initial cause is gluten [or at least leaky gut syndrome which is almost always caused, at least in part, by gluten] and if you want to at least give the steroids and immunosuppressive drugs a chance to cure you.

Well you best do your part and lay off the gluten. I'm five years gluten free and feel I've finally reached the point where I'm ready to try and knock it out with immune suppressors (six months + taper). For me, my major trigger for eosinophilia flares (I can get up to 40% wbc is eosinophils) is histamine rich food. I had celiac disease without realizing why I had gut problems for 20 years and that totally broke my ability to produce many enzymes. Not sure I'll ever get totally better but I'm trying my best.

My doctors are all sure gluten is the major contributor of all modern disease (along with lack of vitamin D) and I agree with that.

New evidence!
by: Kerri Knox, RN- The Immune System Queen

More and more evidence is coming out regarding the role of Increased INtestinal Permeability as the CAUSE of autoimmune diseases and allergic diseases, of which EE is both.

"...autoimmune models suggest that when the finely tuned trafficking of macromolecules is deregulated in genetically susceptible individuals, autoimmune disorders can occur. This new paradigm subverts traditional theories underlying the development of auto-immunity, which are based on molecular mimicry and/or the bystander effect, and suggests that the autoimmune
process can be arrested if the interplay between genes and environmental triggers is prevented by reestablishing the intestinal barrier function."

Zonulin and Its Regulation of Intestinal Barrier Function: The
Biological Door to Inflammation, Autoimmunity, and Cancer



Kerri Knox, RN


EE
by: Andrea

People with autoimmune and inflammatory conditions have different or similar food triggers. Two major foods causing issues are gluten and dairy. For some people simply removing one or both of these foods on their own suffices. However, for others that have disorders, its important to see a physician.

In the case of EE, removal of the top 8 allergens induces complete remission in about 80 percent of the cases, with dairy being the food in many cases. You can also have EE but not feel any symptoms, thus you can't rely on removing dairy and gluten without having an upper endoscopy biopsy to determine whether they are EE triggers.

My daughter has EE. With removal of the top 8 allergens, she still had EE. Her GI doctor removed many more foods from her diet and we are in the process of trying to determine through repeat biopsies what the food triggers are.

agree with doctor
by: Anonymous

I was dx with EoE about two to three months ago. Skin testing didnt show any food allergies except for mild for eggs. I was instructed to first go off dairy. That seemed to help a little. Then I read up on gluten and it seemed those two are the top allergians for EoE according to different sources of what I read.

It helped a lot.

I went out to eat today and had bean... smart huh. It wad a lot more spicy than I thought it would be. Either spicy foods are completely out or there was something else in the chili. I am hoping that is it because I have been feeling better without gluten and dairy but I still have mild symptoms.

I feel like hell today.

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