Low Vitamin D with High CPK Levels

by Mike
(cincinnati)

I am just 27 year old black male. I had been referred to a rheumatologist for a high cpk of 1500. A biopsy has been done and a slew of blood test performed. He has since referred me to a neurologist where an electromyelogram was done.

My symptoms have been muscle and bone aches, extreme fatigue and some weakness. I also have some carpal tunnel and muscle break down in my arms.

I was told my vitamin d level was 8. I really was not stressing over it until I started surfing the web. I am concerned whether it is that big of a deal, should I be hospitalized? My neuro doc kind of seems clueless with what is wrong with me. Plese help share experiences or explain in further detail.

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Are you being treated?
by: Kerri Knox, RN-The Immune Health Queen!

Mike, so are you saying that your doctor is not TREATING you for Vitamin D deficiency?? He didn't tell you to take any pills or give you a prescription for Vitamin D?? Please read my page on Vitamin D Therapy and follow the step-by-step instructions about what to do about your vitamin d levels to get and keep your levels at 'optimal'.

Did your doctor check your Blood Calcium Levels? If he didn't, then you need to have one checked. If your calcium is HIGH then you need to be seen by an endocrinologist. If it is normal or low, then you need to get on the phone and call the office and ask him why he is not treating your VERY SEVERE vitamin D deficiency that could be the cause of many of your symptoms!!!

Seriously, call right now- even if it's after hours, leave a message to have them call you in the morning. Make sure that your calcium level is OK, and if it is they should give you AT LEAST 50,000 IU's once a week, twice a week is even better with how low your Vitamin D Level is. If they don't treat you AT LEAST with 50,000 IU's per week, then you need to find someone who will.

Kerri Knox RN Immune Health Queen

Kerri Knox, RN- The Immune System Queen
Functional Medicine Practitioner
Immune System
Side Effects

PS: If you appreciate the free help that I give on my site, please consider making your next supplement purchase through my Health Store in order to help keep this site in operation.

Mike's vitamin d
by: Anonymous

Thank you for responding.

I was trying to explain that my neurologist does not now why my levels are out of whack. He is not making it to be a big deal, but just from searching the web it seems to be.

The office is suppose to be mailing me a prescription to help. But I have no info on why my vitamin d is like it is,or my cpk.

What can cause this and what are some common immediate dangers. Should my neuro be treating this differently and should I be this concerned.

WHY your vitamin D level is low..
by: Kerri Knox, RN-The Immune Health Queen!

Hey Mike,

OK, that's lots to discuss. Here it goes, first of all, check out my page on Causes of Vitamin D Deficiency. That's a very common question that people have and so everything is discussed there.

In your particular case, being an African-American puts you at high risk because you may need to spend up to 20 times longer in the sun to get the same amount of vitamin D as someone who is very pale. Next, living in cincinnati- you don't get ANY vitamin D from the sun between October to April, so you're likely to vitamin D deficient anyway. And virtually no one gets enough vitamin D in their diet.

Yours in NOT an unusual case. If anything, it's pretty typical, just a lot of times they don't even FIND the vitamin D deficiency.

So, the high CPK- which is a marker for muscle damage is pretty extreme. It COULD be from the vitamin D deficiency because Vitamin D deficiency absolutely can cause weakness and loss of muscle strength. But you should definitely keep an eye on that CPK to see if it improves with the Vitamin D.

OK, so as to whether he is treating you right for what you have, that's a loaded question because people come to me after all of the tests are done and their doctors can't help them anymore. So, I do things VERY differently.

First of all, I would likely have you do an Organix Profile urinary test. This would test all of your B vitamin levels and it does the MOST SENSITIVE vitamin B 12 level available- a methylmalonic acid test. Vitamin B 12 deficiency could absolutely be another cause of your problems.

The organix also tests your:

* Fatty acid levels
* Carbohydrate Metabolism
* Coenzyme q 10 levels- which a deficiency can cause muscle pain, weakness and muscle wasting.
* Your amino acid levels
* Your ability to detoxify chemicals

And it gives recommendations as to what to do with all of the findings. I would then give you some dietary recommendations that would be similar to those in The Healthy Urban Kitchen
. And we'd fix some of the dietary reasons why you are having the problems that you are.

This situation is REALLY telling you that you need to be making some serious changes in your lifestyle. Vitamin D deficiency is a risk factor for Multiple Sclerosis, Cancer, Heart disease, diabetes and a lot more. Catching this at THIS EARLY stage can hopefully help you to ward off a lot of future problems.

Hope this helped.

vitamin d
by: Mike

Thank you so much. I wish my doc could make it that clear. He did give me a prescription for vitamin d 50000, one a day then once a week after the first week.

I finally got all my test results back and I just can not make sense of the whole picture. My pth was 115 and all the doctor gave me is a vitamin d script.

Can that prescription take care of my deficiency, my cpk my pth level and help with my symptoms?

Can it reverse muscle damage or breakdown or even carpal tunnel?

Also is there a place on your web site that breaks down vit d 2 an d3. This is all just so extremely frustrating to me and I just wish it made sense.

Muscle Damage, etc
by: Kerri Knox, RN-The Immune Health Queen!

Hey Mike,

I'm glad that I could help. The dosage your doctor put you on is reasonable, just make sure that you get on a maintenance dose of Vitamin D3 Supplements after you are done. If you are over 150 pounds, then you will likely need around 5000 IU's per day for the rest of your life!

If your PTH is also high, make sure that your calcium is not also high. If your calcium is high, that is a parathyroid problem and you need to see an endocrinologist also!

But if your calcium is normal, the vitamin D will likely fix your pth level as well. Nothing can repair the muscle damage except your own body, but you will have to get further blood tests to make sure that the damage is not continuing.

I do have a page on Vitamin D2 vs D3, but I warn you- you are going to be mad at your doctor for prescribing you a completely inferior product. Researchers say that vitamin D 2 (all prescription vitamin d) should not be used for supplementation!

As far as the Vitamin B 12, you can simply buy a good high quality Sublingual Vitamin B 12 in the form of METHYLCOBALAMIN (yes, it matters!) and take it twice a day. If you start to feel better with it, then continue it, if it doesn't help by the bottom of the bottle, then it likely won't help.

LOTS more that I can tell you, but can't write forever! So, check in when you need to and clean up your diet. You REALLY should check out The Healthy Urban Kitchen
and learn how to eat right. It will make a HUGE difference in your life!

Kerri Knox RN Immune Health Queen

md
by: Mike

Hey Kerri, so here is thew scoop. Since we spoke my neurologist had been reviewing all my labs and biopsy all over again.

He initially wanted me to finish the vitamin d and follow up with him in october. Just out of frustration I called his office asking the nurse if he had any clue or plans for me because I had been taking the vitamin D and it had helped some but still had symptoms.

I told here that my pain and fatigue was less but still there. I didn't like taking the vicodin they gave me because it just make me even more tired. Long story short instead of coming in in october he wanted me in like that very next Monday.

He said after reviewing everything he had on me he thought I may be in the beggining stages of muscular dystrophy. He said he could start me on streroids or lyrica until my symptoms got worse. And follow up every 6 months.

I kind of thought and still do think he may not have a clue about me. I really just want it all to make sense. Should I just let this take its course, or challenge it or get a second opinion?

I mean I'm 27, a bit overweight at 260 bur anyone who sees me would sware I work out. I just have that build so I don't see how this could be true. I have notice weakness in my left arm which is my weaker arm but a bit more than normal. If you have any advice suggestions or words of wisdom to help me!

vitamin d and muscle disease
by: Anonymous

I have been diagnosed with muscular dystrophy (FSHD) by a neurologist. No treatment no therapy or anything is given. Just told to take carnitine each day. I am also having vitamin d (50,000 ius) recommended by a nurse practiioner from another clinic. I attend UMC medical mall and only have medicaid and feel I am not being seen by the best doctors only interns. I have been on vit d for over 2 years and it keep getting depleted. I also have a high calcium level reading. I have not been referred to a endocrinologist or anything. When I get off of the vit d, my face itch and break out. I also lose weight. I am weighing 120 Ibs. and was 130, or 135 my weight go up and down. I have severe muscle wasting and muscle weakness in my body. I use a cane and standing, climbing stairs or bending is a real problem for me. I am so weak most of the time. Please help.

To Mike
by: Anonymous

Hi Mike,

Not sure how old your post is. I am a 30 year old Indian female living in the US who developed exactly those symptoms - muscle pain, fatigue. Carpel tunnel-ish symptoms in right arm. Neuritis/tendinitis in left foot.

After trying for two months in the US, visiting doctors who simply said "stress" and sold me supplements, I came to India where they discovered I had elevated CPK and LDH and vit d deficiency (vit b borderline), and aluminum toxicity. We are still in the process of finding out what it is - it could be anything from myositis to myscular dystrophy to simple vit d deficiency to malignancy.

For you, I'd strongly suggest before going on steroids, find out exactly what it is. If it is simple myositis or one of those inexplicable things that suddenly happens and goes away, the steroids will cause you more problems than the disease. What has helped me:

- taking vit d (cholecalciferol granules) - 60,000 units per week
- vit b intramuscular shots in the form the lady on this forum advised
- massages to eliminate the toxins my muscles seem to be producing and hanging on to have really helped me feel stronger!
- eating better - fresh vegetables, fruits, eggs, lentils, yoghurt, nuts, lots of water; oil is important too in small quantities to help uptake minerals into the body and product necessary fat. and although this is controversial, i think a little chocolate a day is absolutely essential for one's happiness :)
- physio
- nucoxia sp - it is a simple anti-inflammatory, twice a day
- pantocid once a day

Overall, it is a wake up call to change your lifestyle - eat better, exercise, and most importantly, remove the stress from your life that manifests in your body. Be happy and everything will be well! Good luck!

vitamin D defiecient with high CPK levels
by: Colin408

HEY KERRI! i am very astonished and amazed by your intelligence. you seem to care very much about patients. i recently gave up alcohol and cigarettes and for some reason i thought i was going through insane withdrawal. before all of this i was totally fine.

I recently started having lots of unexplainable muscle spasm all over my body along with eye twitches, including needle and pin feelings EVERYWHERE on my body as well as on my scalp! it hurts almost 247, on and off. also forgot to mention that i had joint pains also. ive been in and out of the doctors several times these last two months and was told that my vit-D level was at 15 and CPK was at 4366, retested and is now at 5200. im very concerned. my blood calcium was at 10.3 and was tested again and went normal at 9.8. dr has prescribed me with 50,000 iu weekly and im on my first week of treatment with vit-D 50k iu.

ive been sent to a rheumotologist and hes sending me to neurologist for mri and emg study. ive taken only one vit D 50000 iu so far and seems like joint pained has eased. i am concerned of elevated cpk and low vit-d. do you think i will get better? ive tested for pth, and levels were at 12. 41 diff blood test and these two were the only abnormalities.

please send me feed back id greatly appreciate it! one more thing i didnt mention, i noticed more of the pain feelings after a TDAP shot as well.

Yipes. That's a problem
by: Kerri Knox, RN- The Immune Queen!

Hi Colin,

Yipes! That high of a CPK Blood Test is a problem and is VERY strange. Are you on cholesterol-lowering drugs? That is a not infrequent side effect of statins, so if you are on statins, that's the likely culprit. If you're not on statins, then I don't know why you would have such a high CPK except POSSIBLY it's muscle wasting from such low vitamin D, but that doesn't seem very likely.

But what IS likely is that you also have severe magnesium deficiency. Please take a look at my page on Signs of Magnesium Deficiency- you sound like a CLASSIC case of magnesium deficiency. But DO make sure that your kidney function is still OK before taking any magnesium.

High CPK levels can affect kidney function and you don't want to cause any more problems than you already have by taking magnesium if it's inappropriate for you right now.

So, let me know about the statins or any other drugs that you're on that might be the cause of this...

Kerri Knox RN Immune Health Queen

vitamin D defiecient with high CPK levels
by: Colin408

hey kerri,
i got my emg test done today, and i havent found the results yet as for my magnesium test i am with normal range. doctor is having me do an MRI and a Muscle biopsy next. im really concerned with whats going on. again i wanted to mention my PTH, its at 12points two points away of being under normal is this normal?

this is my 2nd week of taking the vit-D 50k iu, nothing has improved yet. i am having a very difficult time walking due to a knee pain. im scared for my life right now. dr is having my test for cpk again tomorrow along with urine test to see if my kidneys are still working properly. ive been on edge with my life and i really want to get back to normal.

talking to you and other specialist is the only thing that is keeping me sane still. muscles twitches are so annoying! i hope the the vit-D will fix this problem soon...i also wanted to mention that i am only 22 years old and im not on anything like statin drugs, used advil a few times these last 2 months buts thats it! headpains are still there. im going to lose my mind pretty soon. i just want my life back.... thanks for your support though kerri!! i really apreciate it.

Check around my Website
by: Kerri Knox, RN- The Immune Queen!

Hi Colin,

Again, what IS likely is that you also have severe magnesium deficiency. Please take a look at my page on Signs of Magnesium Deficiency- you sound like a CLASSIC case of magnesium deficiency.

Also, read up on my pages on Gluten Sensitivity

and

Vitamin B12 Deficiency

Hmm. Being so young, it's possible that you have a problem making Carnitine as well. Take a look at my page on Got Fatigue, You Might Be Carnitine Deficient.

Kerri Knox RN Immune Health Queen

muscle weakness
by: jane

Hi, I don't know how old these posts are but I have had muscle wasting for 1.5 years. CPK is currently 5200. Vit D levels in low 20s and I have been supplementing with 5000 mg or iu, Vit D. I also started therapy for hypothyroidism a few months ago. I have lost all muscle bulk and life is fatiguing. I'm told my next step is prednisone therapy. I have been putting it off.
Muscle biopsy is negative for inflammation and all genetic tests are negative, ruled out ms, md etc.
I am 5'2" 100#. I was working out very regularly and follow a great diet. too weak to exercise now.
any thoughts?...thanks.

Did you read the thread?
by: Kerri Knox, RN- The Immune Queen!

Hi Jane,

Did you read the thread? I've commented about 10 times on this thread already so it's clear that I have LOTS of thoughts and I've given LOTS of advice to others. So my thoughts are that you should actually do some of the things that I've recommended to others.

And by the way, saying that you have a 'Great Diet' is meaningless. EVERYONE tells me that, even if they have Rice Crispies for breakfast, a white bread and coldcut sandwich for lunch and white pasta for dinner with Coke at each meal.

The people that really do eat a good diet will tell me something like, "I'm on a 100% paleolithic diet with zero processed foods, only pasture raised organic animal products and organic vegetables and zero sugar." or they will say, "I follow a strict Weston A. Price diet and only eat 100% whole foods with no gluten containing grains, no processed foods and only a teaspoon of sugar in my coffee in the morning- which is my one vice.". I've NEVER met a single person who actually DID eat a 'great diet' who stated that their diet was GREAT. When it really IS great, they describe their regimen to me.

I'm sorry to sound harsh, but there is a lot of help in the thread already and to come onto a thread with tons of advice, not do any of it and then ask what my thoughts are is a bit insulting to my time. Please read the thread again and DO some of the things that I've mentioned and feel free to come back and ask any questions that you wish...

Kerri Knox RN Immune Health Queen

Vit d deficient
by: Michelle

I have been to my dr several times with complaints of muscle cramping..three to four episodes while trying to sleep, twitching in my legs...etc. He prescribed gabapentin which seems to help me sleep, but not with the cramps. He then suggested it was in my head, prescribed cymbalta. After my last visit, he done a complete blood workup and found my CPK elevated, vit d was 19.2, b12 125 and the muscle enzymes were also elevated. I had gastric bypass 6 years ago and I understand this is common for that procedure, but I am concerned about the muscle enZymes and the cpk elevation. Is that caused by the deficiencies? He started me on the vit d 5oooo and b12 shots once a week for a month. He is doing repeat lab work in 8 weeks, but that seems far away for me because i am the one suffering from the cramps. Any ideas?

Please read the thread again.
by: Kerri Knox, RN- The Immune Queen!

Please read the thread. I do not know what is causing the high CPK Blood Test, but I talk about signs of magnesium deficiency several times and muscle cramping is a sign of magnesium deficiency.

I have several pages specifically on Causes of Muscle Cramps if you use the search box in the upper right hand corner of every page on this site.

Kerri Knox,RN

Problems have me afriad
by: Sad

Hi, I am a 33 year old adult male. Over the last two weeks I have been through hell on a nightly basis. My diet has been horrible. About me? I am 253 lbs. (down from 259 over the last few weeks,) and I have eaten crap for most of my life. However, over the last month or so I have tried to get out and start walking and eating apples, bananas, strawberries, carrots, celery, salads etc. You get the idea.

I have been a lot better in doing so. However, I fear I may be too late. I have been to the doctors twice. My thigh and calve muscles ache and cramp at night along with me feeling flushed. It only seems to be at night, but it's made it impossible to sleep. I can use a damp towel to help cool down my muscles and my face and for a bit it will make me feel okay until I go back to sleep and I heat up again. During the day I seem to do okay. My ankles have been somewhat sore as well which is usually all the time in varying degrees.

I am currently taking 50 IU of Vitamin D. I went to the doctor on January and I was low but after taking my Rx I went back up to normal. However, in May I went back and I was at 34. I went to the doctor a day ago and got a test that includes glucose, magnesium, potassium, and a few other things I can't remember.

He is also testing my CPK levels, and doing a CBC. I am currently awaiting results for these. I forgot to mention when I went to him in May I had a pain in my upper left quadrant on my abdomen. He gave me an Rx for Pepcid which has helped that some (I take it twice a day.) My recent visit here in June he gave me an Rx of Mobic (Meloxicam) 7.5 mg. I took one tonight and I feel like I felt better when I took 2 Aspirin @ 325 mg a pill. I am really scared of what has become of my health and am really feeling like I am on the verge of tears.

Vitamin D in connection with CPK levels
by: Anonymous

My daughter was just told her blood test showed she has no vitamin D in her blood and her CPK levels are very high, she is only 21 years old. They are sending her to repeat the blood work once more as a double check. But I am worried. I recently had to have a muscle biopsy done due to my CPK levels being so high,and all my muscles ache, my joins hurt and crack all over my body. Could this be hereditary? I am scheduled to see a neurologist to have a EMG done next.

Asking the wrong question
by: Kerri Knox, RN- The Immune System Queen

It's unlikely to be hereditary, it's more likely that you both have the same habits of avoiding Vitamin D. Wondering if it's genetic is the wrong question, in my opinion, because you can't do anything about it. The better question is, "What are we both doing wrong that we have the same health problems". Not because it ISN'T hereditary, but because EVEN IF IT IS hereditary, genes are not 'static', but work with the environment in the ways that they express their proteins. In other words, you can turn genes for most health problems 'on' or 'off' depending upon the environment that you give them.

So, speculating about your genetics is a pretty futile exercise, in my opinion. Trying to find out the source of the problem in order to change your health outcomes is a MUCH MUCH better way to put your mental effort to work.

Kerri Knox RN Immune Health Queen

A doctor's penny's worth of thoughts
by: Dr Enigma

Hi I was researching UK/US recommended dosing of B12 injections in pernicious anaemia diagnosed only at age 60 for one pt I inherited from another clinic when I came across all the posts but all undated ... so as a doc, thought I'd contribute my penny's worth. Vit D deficiency is so common but when it is severe enough to be blamed for myalgia or elevated CK, U need to exclude other deficiencies (iron, Mg, folate, Zn, serum corrected calcium, etc) which may also suggest the possibility of a malabsorption disorder (gastroenterologist assessment thr endoscopy, blood tests, malabsorption breath tests etc), or endocrine causes such as primary hyperparathyroidism.

To the blogger with a PTH of 115, that is a terrifying reading unless your PTH lab range is different from what we have Downunder and even if you were normocalcaemic, you should be seeking an endocrine assessment with a view to neck ultrasound and a parathyroid sestamibi scan (if it shows a lesion, your endocrinologist will then refer you to an endocrine surgeon) but if this is normal, you would need to make sure your PTH drops towards normality as the Vit D deficiency is corrected.

Don't forget other causes of elevated CK besides Statin Side Effects or sports/work/lifestyle - other causes could include hypothyroidism, neurological pathology (nerve conduction studies/EMG), orthopaedic/rheumatological conditions (auto-immune or anatomical pathology such as an inflammatory arthropathy so auto-immune blood tests, inflammatory markers and imaging may also be required tests).

Do not assume just cuz one possible cause is identified, that there are not other possible causes. Make a list of ALL your symptoms, gather your family history as it may unveil possible familial/genetic risk factors, do not self-initiate supplements, keep going back for review ... ask for copies of your results in case U get fed up and seek a second opinion, investigation often requires a multidisciplinary approach and often, may require more than one doctor to assess. The role of the general practitioner is to work thr all the different systems, organise the basic tests, provide a provisional diagnosis and refer to specialists to conduct tests he/she cannot access directly for you.

CPK levels 1100
by: Anonymous

My legs have been hurting for over a year. My doctor prescribed pain medications Advil, etc every night. I quit taking statin drugs in 2013 after learning they could be the cause. I have also had problems with fatigue, irregular heart beats, tachycardia, mitral valve prolapse, etc...

Recently I had leg pain so severe I went to ER. I was diagnosed with severe rhabdromyolysis. My cPK levels were 1100. I was given 2 bags of fluid by IV and sent home with instructions to drink 140 oz of water a day and follow up with my dr. In 3-5 days. After 4 days my levels were 330. I have another appt. in 4 weeks.

My question is could statin drugs have caused this? Should I see a special muscle doctor? My calcium was also elevated, even though I don't have those results. I am 58 years old. Does this reoccur and how long does it take to feel better. My legs don't hurt as bad, but I am so tired.

Rhabdomyolosis is a known side effect of Statins
by: Kerri Knox, RN

Rhabdomyolosis is a known side effect of statin drugs. Please see my page on Rhabdomyolosis and Statins. Yes, you could get this again if you stay on statins.

If you do the research on statins, there is a less than 1% benefit to heart disease in men and they may possibly even lead to an increased mortality rate for women. So, considering you almost died from statin use, well... you might want to investigate whether the benefits of statins is worth the risk for you.

Also, you should read the thread you are commenting on. As you will probably find some serious clues in it as to how you might feel better.

Kerri Knox RN Immune Health Queen

Switching of genes?
by: Hopeful

Hi Kerry,
I am really interested in your comment from above "Because EVEN IF IT IS hereditary, genes are not 'static', but work with the environment in the ways that they express their proteins. In other words, you can turn genes for most health problems 'on' or 'off' depending upon the environment that you give them." I have been searching for information around the Web on this but as yet have come up empty handed.

We have a family history of a rare form of muscular dystrophy known as warburg walker syndrome and have lost 3 children to the disease. I am wondering if there is some kind of supplementation etc (and research on this) we could try to "switch off these genes" when trying to conceive more children. I recently had some blood tests done and am, very low in B12 and wondered if this might have something to do with it.

A point I the right direction would be greatly appreciated. Thank you. Kind regards, C

genetic switching
by: Kerri Knox, RN

Here is a book by the modern 'father' of this concept, Bruce Lipton. It's called the The Biology of Belief.

But this is not a new concept. It's the reason why you exercise if you have a history of heart disease. If your genetics pre-determined your health, then it wouldn't matter if you exercised and smoked if you had the genetics for heart disease, right? So this is already 'built into' our medical system, it's just that no one talks about it.

Certainly, it has limitations. A child born with Down's Syndrome is not going to not have it because she took supplements. It doesn't work that way, but that same kid might have a lot higher functioning if she provides those genes an optimal environment.

There are certain genetics that you cannot avoid entirely and I have no idea whether the genetic issue you have is amenable to 'switching' the genetics on or off, and hoping there is simply some supplement you can take to overcome any genetic issues is probably wishful thinking. It's more complex than that.

However, when it's a case of genetics that can switch on and off for diseases, then you can potentially change these genetic switches.

In fact, there was a recent study about centenarians (those who have lived over 100 years) where they found that they had the same genetic predispositions for diseases as everyone else.

And your Vitamin B12 deficiency could be an indicator of Gluten Sensitivity, which has been linked to a large variety of different disease processes, including infertility. And being B12 deficient is linked to infertility in and of itself. So, you have two reasons right there that you might be infertile, not even considering your genetic quirks.

Kerri Knox RN Immune Health Queen

Cpk
by: Anonymous

I have cpk at 1500 and biopsy done rheumatologist had done multiple X-rays blood work and said biopsy is not showing a virus to determine why my levels are so high ,I'm very tired of not knowing what's wrong I been in the hospital several times no one seems to know

Rise in CK level and Very low Vitamin D level
by: Anonymous

I was just told that My Vitamin D was 20 and that my CK level was high, my question is would that be causing my legs to hurt when I get up or out of bed or out of my truck, they are always sore. Please let me know what you think. I am 53 years old and am not overweight and in good health.

Thank You

High CPK for over 13 years
by: Anonymous

African American male 45,had a check up in November cpk level was 2214,had another blood test just a week ago cpk level 2232,after 12 years of no answers from my doctor I am ready to move on from him,ive had a biopsy nothing was found & several nerve test,everything negative,im starting to get worried though

Help! Me too!
by: Lynette

I have been going through this for years. Very exhausting. CPK at highest was 7700 and lowest has been 2500. Have been treated with IVIG, Rituxan, Methotrexate and Prednisone. I have a team of oncologist, Rheumutologist, pulmonologist and primary trying to figure it out. I am going to start Vitamin D again and Vitamin E in addition to all the other meds I am taking. Hopefully this prescriptions will help. Extremely frustrating...

Just wondering about original poster
by: Anonymous

Its been a while since this thread has been open. I am just wondering if the original poster has figured out what was wrong. I basically have very similar symptoms and have tried just about everything.

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