Genetic test to rule out Celiac Disease?

My son tested negative on the blood test for Celiac's Disease.


On one of our trips to the Urgent Care when my son thought he was going to pass out from the pain, a nurse told us that the blood test could be false negative but what he needed was the genetic test (her whole family has Celiac's Diease, tested negative on blood test, but positive on genetic test).

Thank you,

Mary

Comments for Genetic test to rule out Celiac Disease?

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What If His Genetic Test is Negative...
by: Kerri Knox, RN- The Immune Queen!

Hi Mary,

Please take a look at my page on Diagnosing Gluten Sensitivity. The tests are NOT accurate and will only tell you if he has Celiac Disease. What they will NOT tell you is if your son will BENEFIT from a gluten free diet. There is a big difference.

Just like you don't have to have lactose intolerance or break out in hives after eating strawberries to know if these foods just don't 'agree' with you, you also don't need to get a 'diagnosis' of anything in order to try a gluten free diet to see if it will benefit you (or your son in this case).

I'll assume that your son is having stomach pains, although you don't give me any background on his age, what type of pain he's having, etc. But if it is stomach pain, then GET HIM OFF OF GLUTEN NOW!!!

If he's in such pain that he has to go to the Emergency Room, you don't need a doctor's note to see if specific foods are causing his problem- nor do you need a genetic test.

What will you do if the test comes back negative? Will you continue to have your son eat gluten and have stomach pains? What if your son has Non Celiac Gluten Intolerance and you continue to feed him gluten because the 'tests' come back negative and your doctor tells you going off of gluten won't help? What if you find out two years from now that your doctor is wrong and the genetic test is wrong and your son has suffered for two more years when simply removing a food from his diet would have helped him?

The quickest, cheapest,easiest, safest and most accurate way to find out if he can't tolerate gluten is to take him off gluten for two months and see how he feels. I'd also take him off of dairy at the same time to see if that could be causing his problems.


Kerri Knox RN Immune Health Queen

Kerri Knox, RN- The Immune System Queen
Functional Medicine Practitioner
Immune System

 


PS: If you found this website helpful, please consider using the
Easy Immune Health Product Store the next time you purchase your supplements online. Your support allows me to keep this site running and educating as many people as possible. Thank you!
testing for celiac's disease
by: Mary

Thank you for your comments. Very helpful. If it helps, my son is 16 yrs old but has had "stomach problems" since 4th grade.

In the past 6 months his symptoms have gotten increasingly worse; so bad sometimes that he feels faint from the pain. After using the bathroom several times (diahrea) he feels better.

My next step is to go to the ER. He has missed more than 1/2 his school year. What cookbook or "list of foods" would you suggest for this situation - to eliminate any and all possible problem foods.

He eats no dairy as we thought it might be lactose intolerance (he still had the terrible pain).

Thank you, Mary
Getting on a gluten Free Diet...
by: Kerri Knox, RN- The Immune Queen!

Hi Mary,

Yes, there are many 'special' things that your son (and you) will need to know. Don't go it alone and 'think' that you are avoiding gluten. He'll need to make sure that he is 100% gluten free for a couple of months as a good 'test'.

Some people can be EXTREMELY sensitive to gluten and don't see improvement on a gluten free diet because of 'hidden gluten' that you will find in many many foods.

So, I suggest that you get the Real Food Summit to get you on the path to eating the RIGHT way for good health. End the confusion about what to eat today!

There is definitely a learning curve, so make sure you learn it the right way so that you are sure he's really gluten free.





If you've found that he benefits from a gluten free diet, then he can add in gluten occasionally and see how he feels. He'll have to find a 'balance' on how much he'll be able to eat (which may be none), but get through the first two months and see how he does.

Good luck, I hope that this helps.


Kerri Knox RN Immune Health Queen

Kerri Knox, RN- The Immune System Queen
Functional Medicine Practitioner
Immune System

 


PS: If you found this website helpful, please consider using the
Easy Immune Health Product Store the next time you purchase your supplements online. Your support allows me to keep this site running and educating as many people as possible. Thank you!

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