Can Epilepsy be Related to Gluten Sensitivity

by Brooklyne

My daughter is 3 years old and has had epilepsy since she was 9 months old. She has severe seizures. She is also lactose intolerant. A friend of mine told me about a possible link between epilepsy && lactose intolerance, so I began doing some research.

The research kept mentioning that it could be a gluten sensitivity as well. So I also began looking up information on gluten sensitivity, which brought me to your page. Reading about the symptoms I realized that my daughter has many of the symptoms, she is lactose intolerant, anemic, epileptic, she is constantly getting infections, & she is very tired all of the time.

Should I get her tested for gluten sensitivity?

Would I have to go to a specialist to do so?

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Getting Her Tested
by: Kerri Knox, RN- The Immune Queen!

Hi Brooklyne,

I certainly can't tell you whether you 'should' get your daughter tested or not, but it does sound like she's quite sick and has many of the symptoms associated with Celiac Disease.

There are many studies that propose that anyone with anemia should have Celiac Disease suspected and be tested.

But there are several pitfalls to being tested. First of all, read my page on Diagnosing Food Allergy to see why she could still have gluten sensitivity even if she does every test in the world and it comes back negative.

Fortunately, if the tests come back positive, then you would know for sure. Any doctor can order the blood tests for Celiac Disease, but gastroenterologists (stomach doctors) are the most familiar with them. Do know that there is also a test that you can order over the internet (and your doctor may also be able to order it too) called My Celiac ID that tests to see if the genes for Celiac Disease are present.

While this test can't tell you if she DOES have Celiac Disease, it can tell you if she has the genes for it. But in the end, she could still be gluten sensitive even if all the tests come back negative and the genetic test is negative and then you'd still have to decide whether or not to try her on a gluten free diet anyway.

If you do decide to get her tested, though, do remember that she MUST be on a gluten-containing diet for the tests to be accurate. If you put her on a gluten free diet while she is being tested, they can be falsely negative and can cause much confusion for everyone.

Also, if you do decide to get her tested, you may need to really push the issue with her doctors as they may not understand that anemia and lactose intolerance could be symptoms of Celiac Disease. So, be prepared to have to be quite assertive if you do talk to her doctors about getting tested.

Kerri Knox RN Immune Health Queen

Kerri Knox, RN- The Immune System Queen
Functional Medicine Practitioner
Immune System
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